{"id":29632,"date":"2024-09-17T08:21:48","date_gmt":"2024-09-17T06:21:48","guid":{"rendered":"https:\/\/alan.lu\/?page_id=29632"},"modified":"2024-10-14T10:34:51","modified_gmt":"2024-10-14T08:34:51","slug":"rare-rewind","status":"publish","type":"page","link":"https:\/\/alan.lu\/de\/rare-rewind\/","title":{"rendered":"Rare Rewind"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row content_width=&#8221;grid&#8221;][vc_column][vc_column_text css=&#8221;&#8221;]<\/p>\n<h2 style=\"text-align: center;\">Die \u201eRare Rewind\u201c Kampagne<\/h2>\n<p>[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;]\n<p class=\"edgtf-section-subtitle\" style=\"text-align:center;color:#58595b\">\n\tWas w\u00fcrdest du deinem \u201efr\u00fcheren Ich\u201c sagen?<\/p><div class=\"edgtf-separator-holder clearfix  edgtf-separator-center\">\n\t<div class=\"edgtf-separator\" style=\"border-color: #00bcdf;width: 50px;border-bottom-width: 3px;margin-top: 25px;margin-bottom: 25px\"><\/div>\n<\/div>\n[vc_empty_space height=&#8221;14px&#8221;][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text css=&#8221;&#8221;]Anfang Oktober 2024 startete die gemeinn\u00fctzige Vereinigung und nationale Allianz f\u00fcr Menschen, die in Luxemburg von einer seltenen Erkrankung betroffen sind, ALAN \u2013 Maladies Rares Luxembourg, eine neue online Kampagne mit der Unterst\u00fctzung ihrer Partner, der <a href=\"https:\/\/alsr.lu\/\">Association Luxembourgeoise du Syndrome de Rett<\/a> (ALSR), <a href=\"https:\/\/edsletzebuerg.lu\/2\/\">EDS L\u00ebtzebuerg<\/a> ,\u00a0<a href=\"https:\/\/www.kriibskrankkanner.lu\/\">Een H\u00e4erz fir kriibskrank Kanner<\/a> , <a href=\"https:\/\/www.waertvollt-liewen.lu\/\">W\u00e4ertvollt Liewen<\/a>\u00a0und der <a href=\"https:\/\/www.alaec.lu\/\">Association Luxembourgeoise d&#8217;Aide aux Enfants Cardiaques<\/a>.<\/p>\n<p>Ziel der Kampagne ist es, die \u00d6ffentlichkeit f\u00fcr seltene Krankheiten und deren Auswirkungen auf den Alltag der Betroffenen zu sensibilisieren. Dabei liegt ein besonderer Schwerpunkt auf der Komplexit\u00e4t und Vielschichtigkeit des Weges, den die Betroffenen gehen m\u00fcssen.<\/p>\n<p>Die Kampagne nimmt sieben Menschen, die von einer seltenen Erkrankung betroffen sind, mit auf eine Reise durch die Zeit und fordert sie auf, \u00fcber den bisherigen Weg mit ihrer Krankheit nachzudenken \u2013 ein Weg, der oft von Fehldiagnosen, mangelndem Verst\u00e4ndnis und emotionalen H\u00f6hen und Tiefen gepr\u00e4gt ist. In einer Serie von Kurzvideos wenden sich die betroffenen Jugendlichen und Erwachsenen an ihr \u201efr\u00fcheres Ich\u201c: Wenn eine Zeitmaschine sie in den Moment zur\u00fcckversetzen k\u00f6nnte, in dem ihre Symptome erstmals aufgetreten sind, was w\u00fcrden sie sich selbst sagen wollen? Welche Ratschl\u00e4ge w\u00fcrden sie ihrem \u201efr\u00fcheren Ich\u201c geben?<\/p>\n<p>Unterst\u00fctzen Sie die Kampagne, indem Sie die Videos teilen oder aktiv mitmachen in den sozialen Medien (\u00a0<a href=\"https:\/\/www.facebook.com\/alanmaladiesraresluxembourg\">Facebook<\/a>,\u00a0<a href=\"https:\/\/www.instagram.com\/alanmaladiesraresluxembourg\/\">Instagram<\/a>\u00a0&amp;\u00a0<a href=\"https:\/\/www.tiktok.com\/@alan_maladies_rares_lux\">TikTok<\/a>) !! Die Details dazu finden Sie unten auf dieser Seite.<\/p>\n<p>Ein riesengro\u00dfes DANKESCH\u00d6N an unsere Partner, insbesondere ALSR, und an unsere Botschafter\/innen Vicky, Abby, Jean-Francis, Manon &amp; Nathasha, Lara, Cassandra und St\u00e9pahnie f\u00fcr ihren Mut, ihre Offenheit und ihre Ehrlichkeit.[\/vc_column_text][vc_empty_space height=&#8221;64px&#8221;][\/vc_column][\/vc_row][vc_row content_width=&#8221;grid&#8221;][vc_column][vc_column_text]<\/p>\n<h2 style=\"text-align: center;\">Die Instagram Reels und TikToks<\/h2>\n<p>[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;]<div class=\"edgtf-separator-holder clearfix  edgtf-separator-center\">\n\t<div class=\"edgtf-separator\" style=\"border-color: #00bcdf;width: 50px;border-bottom-width: 3px;margin-top: 25px;margin-bottom: 25px\"><\/div>\n<\/div>\n[vc_empty_space height=&#8221;14px&#8221;][\/vc_column][\/vc_row][vc_row][vc_column width=&#8221;1\/3&#8243;]\n<div class=\"edgtf-team main-info-below-image\">\n\t<div class=\"edgtf-team-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-image\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1.jpg 1080w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1-300x300.jpg 300w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1-1024x1024.jpg 1024w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1-150x150.jpg 150w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1-768x768.jpg 768w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1-550x550.jpg 550w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1-1000x1000.jpg 1000w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1-600x600.jpg 600w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Vicky-1080x1080-1-100x100.jpg 100w\" sizes=\"auto, (max-width: 1080px) 100vw, 1080px\" \/>                                    <a class=\"edgtf-team-image-link icomoon-icon-link\" itemprop=\"url\" href=\"https:\/\/youtu.be\/oiqLJkiq8Vw\" target=\"_self\"><\/a>\n                \t\t\t<\/div>\n\t\t\n\t\t\t\t\t<div class=\"edgtf-team-info\">\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-team-title-holder normal_social\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<h4 class=\"edgtf-team-name\" >\n\t\t\t\t\t\t\t\t<a class=\"team-link-name\"  href=\"https:\/\/youtu.be\/oiqLJkiq8Vw\">Vicky<\/a>\n\t\t\t\t\t\t\t<\/h4>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class='edgtf-team-text'>\n\t\t\t\t\t\t<div class='edgtf-team-text-inner'>\n\t\t\t\t\t\t\t<div class='edgtf-team-description'>\n\t\t\t\t\t\t\t\t<p >Klicken Sie auf das Foto, um das Video anzusehen<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t<div class=\"edgtf-team-social-holder-between\">\n\t\t\t<div class=\"edgtf-team-social normal_social\">\n\t\t\t\t<div class=\"edgtf-team-social-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-social-wrapp\">\n\n\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\n\t\t<\/div>\n\t<\/div>\n<\/div>[vc_empty_space][\/vc_column][vc_column width=&#8221;1\/3&#8243;]\n<div class=\"edgtf-team main-info-below-image\">\n\t<div class=\"edgtf-team-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-image\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1.jpg 1080w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1-300x300.jpg 300w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1-1024x1024.jpg 1024w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1-150x150.jpg 150w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1-768x768.jpg 768w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1-550x550.jpg 550w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1-1000x1000.jpg 1000w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1-600x600.jpg 600w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Abby-1080x1080-1-100x100.jpg 100w\" sizes=\"auto, (max-width: 1080px) 100vw, 1080px\" \/>                                    <a class=\"edgtf-team-image-link icomoon-icon-link\" itemprop=\"url\" href=\"https:\/\/www.youtube.com\/shorts\/8a-Hsa4_MFs\" target=\"_self\"><\/a>\n                \t\t\t<\/div>\n\t\t\n\t\t\t\t\t<div class=\"edgtf-team-info\">\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-team-title-holder normal_social\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<h4 class=\"edgtf-team-name\" >\n\t\t\t\t\t\t\t\t<a class=\"team-link-name\"  href=\"https:\/\/www.youtube.com\/shorts\/8a-Hsa4_MFs\">Abby<\/a>\n\t\t\t\t\t\t\t<\/h4>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class='edgtf-team-text'>\n\t\t\t\t\t\t<div class='edgtf-team-text-inner'>\n\t\t\t\t\t\t\t<div class='edgtf-team-description'>\n\t\t\t\t\t\t\t\t<p >Klicken Sie auf das Foto, um das Video anzusehen<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t<div class=\"edgtf-team-social-holder-between\">\n\t\t\t<div class=\"edgtf-team-social normal_social\">\n\t\t\t\t<div class=\"edgtf-team-social-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-social-wrapp\">\n\n\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\n\t\t<\/div>\n\t<\/div>\n<\/div>[vc_empty_space][\/vc_column][vc_column width=&#8221;1\/3&#8243;]\n<div class=\"edgtf-team main-info-below-image\">\n\t<div class=\"edgtf-team-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-image\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1.jpg 1080w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1-300x300.jpg 300w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1-1024x1024.jpg 1024w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1-150x150.jpg 150w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1-768x768.jpg 768w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1-550x550.jpg 550w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1-1000x1000.jpg 1000w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1-600x600.jpg 600w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Jean-Francis-1080x1080-1-100x100.jpg 100w\" sizes=\"auto, (max-width: 1080px) 100vw, 1080px\" \/>                                    <a class=\"edgtf-team-image-link icomoon-icon-link\" itemprop=\"url\" href=\"https:\/\/youtu.be\/rzPzDzZtS84\" target=\"_self\"><\/a>\n                \t\t\t<\/div>\n\t\t\n\t\t\t\t\t<div class=\"edgtf-team-info\">\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-team-title-holder normal_social\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<h4 class=\"edgtf-team-name\" >\n\t\t\t\t\t\t\t\t<a class=\"team-link-name\"  href=\"https:\/\/youtu.be\/rzPzDzZtS84\">Jean-Francis<\/a>\n\t\t\t\t\t\t\t<\/h4>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class='edgtf-team-text'>\n\t\t\t\t\t\t<div class='edgtf-team-text-inner'>\n\t\t\t\t\t\t\t<div class='edgtf-team-description'>\n\t\t\t\t\t\t\t\t<p >Klicken Sie auf das Foto, um das Video anzusehen<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t<div class=\"edgtf-team-social-holder-between\">\n\t\t\t<div class=\"edgtf-team-social normal_social\">\n\t\t\t\t<div class=\"edgtf-team-social-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-social-wrapp\">\n\n\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\n\t\t<\/div>\n\t<\/div>\n<\/div>[vc_empty_space][\/vc_column][\/vc_row][vc_row][vc_column width=&#8221;1\/3&#8243;]\n<div class=\"edgtf-team main-info-below-image\">\n\t<div class=\"edgtf-team-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-image\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1.jpg 1080w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1-300x300.jpg 300w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1-1024x1024.jpg 1024w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1-150x150.jpg 150w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1-768x768.jpg 768w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1-550x550.jpg 550w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1-1000x1000.jpg 1000w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1-600x600.jpg 600w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Lara-1080x1080-1-100x100.jpg 100w\" sizes=\"auto, (max-width: 1080px) 100vw, 1080px\" \/>                                    <a class=\"edgtf-team-image-link icomoon-icon-link\" itemprop=\"url\" href=\"https:\/\/youtu.be\/TAvAv-WYAoM\" target=\"_self\"><\/a>\n                \t\t\t<\/div>\n\t\t\n\t\t\t\t\t<div class=\"edgtf-team-info\">\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-team-title-holder normal_social\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<h4 class=\"edgtf-team-name\" >\n\t\t\t\t\t\t\t\t<a class=\"team-link-name\"  href=\"https:\/\/youtu.be\/TAvAv-WYAoM\">Lara<\/a>\n\t\t\t\t\t\t\t<\/h4>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class='edgtf-team-text'>\n\t\t\t\t\t\t<div class='edgtf-team-text-inner'>\n\t\t\t\t\t\t\t<div class='edgtf-team-description'>\n\t\t\t\t\t\t\t\t<p >Klicken Sie auf das Foto, um das Video anzusehen<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t<div class=\"edgtf-team-social-holder-between\">\n\t\t\t<div class=\"edgtf-team-social normal_social\">\n\t\t\t\t<div class=\"edgtf-team-social-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-social-wrapp\">\n\n\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\n\t\t<\/div>\n\t<\/div>\n<\/div>[vc_empty_space][\/vc_column][vc_column width=&#8221;1\/3&#8243;]\n<div class=\"edgtf-team main-info-below-image\">\n\t<div class=\"edgtf-team-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-image\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1.jpg 1080w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1-300x300.jpg 300w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1-1024x1024.jpg 1024w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1-150x150.jpg 150w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1-768x768.jpg 768w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1-550x550.jpg 550w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1-1000x1000.jpg 1000w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1-600x600.jpg 600w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Manon-Natascha-1080x1080-1-100x100.jpg 100w\" sizes=\"auto, (max-width: 1080px) 100vw, 1080px\" \/>                                    <a class=\"edgtf-team-image-link icomoon-icon-link\" itemprop=\"url\" href=\"https:\/\/youtu.be\/exBhuZul4qY\" target=\"_self\"><\/a>\n                \t\t\t<\/div>\n\t\t\n\t\t\t\t\t<div class=\"edgtf-team-info\">\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-team-title-holder normal_social\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<h4 class=\"edgtf-team-name\" >\n\t\t\t\t\t\t\t\t<a class=\"team-link-name\"  href=\"https:\/\/youtu.be\/exBhuZul4qY\">Manon &amp; Natascha<\/a>\n\t\t\t\t\t\t\t<\/h4>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class='edgtf-team-text'>\n\t\t\t\t\t\t<div class='edgtf-team-text-inner'>\n\t\t\t\t\t\t\t<div class='edgtf-team-description'>\n\t\t\t\t\t\t\t\t<p >Klicken Sie auf das Foto, um das Video anzusehen<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t<div class=\"edgtf-team-social-holder-between\">\n\t\t\t<div class=\"edgtf-team-social normal_social\">\n\t\t\t\t<div class=\"edgtf-team-social-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-social-wrapp\">\n\n\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\n\t\t<\/div>\n\t<\/div>\n<\/div>[vc_empty_space][\/vc_column][vc_column width=&#8221;1\/3&#8243;]\n<div class=\"edgtf-team main-info-below-image\">\n\t<div class=\"edgtf-team-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-image\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1.jpg 1080w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1-300x300.jpg 300w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1-1024x1024.jpg 1024w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1-150x150.jpg 150w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1-768x768.jpg 768w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1-550x550.jpg 550w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1-1000x1000.jpg 1000w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1-600x600.jpg 600w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Cassandra-1080x1080-1-100x100.jpg 100w\" sizes=\"auto, (max-width: 1080px) 100vw, 1080px\" \/>                                    <a class=\"edgtf-team-image-link icomoon-icon-link\" itemprop=\"url\" href=\"https:\/\/youtu.be\/eoZW3LjudsI\" target=\"_self\"><\/a>\n                \t\t\t<\/div>\n\t\t\n\t\t\t\t\t<div class=\"edgtf-team-info\">\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-team-title-holder normal_social\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<h4 class=\"edgtf-team-name\" >\n\t\t\t\t\t\t\t\t<a class=\"team-link-name\"  href=\"https:\/\/youtu.be\/eoZW3LjudsI\">Cassandra<\/a>\n\t\t\t\t\t\t\t<\/h4>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class='edgtf-team-text'>\n\t\t\t\t\t\t<div class='edgtf-team-text-inner'>\n\t\t\t\t\t\t\t<div class='edgtf-team-description'>\n\t\t\t\t\t\t\t\t<p >Klicken Sie auf das Foto, um das Video anzusehen<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t<div class=\"edgtf-team-social-holder-between\">\n\t\t\t<div class=\"edgtf-team-social normal_social\">\n\t\t\t\t<div class=\"edgtf-team-social-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-social-wrapp\">\n\n\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\n\t\t<\/div>\n\t<\/div>\n<\/div>[vc_empty_space][\/vc_column][\/vc_row][vc_row][vc_column width=&#8221;1\/3&#8243;]\n<div class=\"edgtf-team main-info-below-image\">\n\t<div class=\"edgtf-team-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-image\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"1080\" height=\"1080\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1.jpg 1080w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1-300x300.jpg 300w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1-1024x1024.jpg 1024w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1-150x150.jpg 150w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1-768x768.jpg 768w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1-550x550.jpg 550w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1-1000x1000.jpg 1000w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1-600x600.jpg 600w, https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/Stephanie-1080x1080-1-100x100.jpg 100w\" sizes=\"auto, (max-width: 1080px) 100vw, 1080px\" \/>                                    <a class=\"edgtf-team-image-link icomoon-icon-link\" itemprop=\"url\" href=\"https:\/\/youtu.be\/2SOcVMNg-Sk\" target=\"_self\"><\/a>\n                \t\t\t<\/div>\n\t\t\n\t\t\t\t\t<div class=\"edgtf-team-info\">\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-team-title-holder normal_social\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<h4 class=\"edgtf-team-name\" >\n\t\t\t\t\t\t\t\t<a class=\"team-link-name\"  href=\"https:\/\/youtu.be\/2SOcVMNg-Sk\">St\u00e9phanie<\/a>\n\t\t\t\t\t\t\t<\/h4>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class='edgtf-team-text'>\n\t\t\t\t\t\t<div class='edgtf-team-text-inner'>\n\t\t\t\t\t\t\t<div class='edgtf-team-description'>\n\t\t\t\t\t\t\t\t<p >Klicken Sie auf das Foto, um das Video anzusehen<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t<div class=\"edgtf-team-social-holder-between\">\n\t\t\t<div class=\"edgtf-team-social normal_social\">\n\t\t\t\t<div class=\"edgtf-team-social-inner\">\n\t\t\t\t\t<div class=\"edgtf-team-social-wrapp\">\n\n\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\n\t\t<\/div>\n\t<\/div>\n<\/div>[vc_empty_space][\/vc_column][vc_column width=&#8221;1\/3&#8243;][\/vc_column][vc_column width=&#8221;1\/3&#8243;][\/vc_column][\/vc_row][vc_row content_width=&#8221;grid&#8221;][vc_column][vc_empty_space height=&#8221;64px&#8221;][vc_column_text]<\/p>\n<h2 style=\"text-align: center;\">Unterst\u00fctzen Sie die Kampagne<\/h2>\n<p>[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;]<div class=\"edgtf-separator-holder clearfix  edgtf-separator-center\">\n\t<div class=\"edgtf-separator\" style=\"border-color: #00bcdf;width: 50px;border-bottom-width: 3px;margin-top: 25px;margin-bottom: 25px\"><\/div>\n<\/div>\n[vc_empty_space height=&#8221;14px&#8221;][vc_column_text css=&#8221;&#8221;]Sie k\u00f6nnen die Kampagne und somit die \u201eGemeinschaft der Seltenen\u201c unterst\u00fctzen, indem Sie die Kampagnenvideos teilen und sich an der Diskussion in den sozialen Medien beteiligen.<\/p>\n<p>Wenn Sie diese Gedanken\u00fcbung \u00fcber den Weg mit ihrer seltenen Erkrankung selbst machen m\u00f6chten, ermutigen wir Sie, Ihre eigenen Fotos aus der Vergangenheit zu teilen, zusammen mit einem Text, in dem Sie beschreiben, was Sie Ihrem \u201efr\u00fcheren Ich\u201c sagen w\u00fcrden. Posten Sie diese Fotos und Videos in den sozialen Medien, taggen Sie ALAN und vergessen Sie nicht, den Hashtag #rarerewind zu verwenden. Wir freuen uns darauf, Ihre Botschaften und Ratschl\u00e4ge zu lesen!<\/p>\n<p>Um die Videos und unsere Facebook-, Instagram- und TikTok-Konten zu finden, klicken Sie einfach auf die untenstehenden Schaltfl\u00e4chen.[\/vc_column_text][\/vc_column][\/vc_row][vc_row content_width=&#8221;grid&#8221; css=&#8221;.vc_custom_1603354399161{padding-top: 36px !important;padding-bottom: 41px !important;}&#8221; el_id=&#8221;wrapper-contact-next-btn&#8221;][vc_column width=&#8221;1\/3&#8243;]\t<div class=\"edgtf-call-to-action normal\" style=\"background-color: #00b4dd;\">\n\n\t\t\t\t\t<div class=\"edgtf-call-to-action-row-75-25 clearfix\" style=\"padding: 55px 15px;\">\n\t\t\t\t\t\t<div class=\"edgtf-text-wrapper edgtf-call-to-action-column1 edgtf-call-to-action-cell left\">\n\t\t\t\t\t<div class=\"edgtf-call-to-action-text\" style=\"text-align: left\"><span style=\"color: #ffffff;\">Unterst\u00fctzen Sie die Kampagne<\/span>\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-button-wrapper edgtf-call-to-action-column2 edgtf-call-to-action-cell\" style =\"text-align: right ;\">\n\t\t\t\t\t\t<a itemprop=\"url\" href=\"https:\/\/www.instagram.com\/alanmaladiesraresluxembourg\/\" target=\"_self\" style=\"color: #00b4dd;background-color: #ffffff;border-color: #ffffff\" class=\"edgtf-btn edgtf-btn-large edgtf-btn-solid edgtf-btn-custom-hover-bg edgtf-btn-custom-border-hover edgtf-btn-custom-hover-color\" data-hover-bg-color=\"#00b4dd\" data-hover-color=\"#ffffff\" data-hover-border-color=\"#ffffff\" >\t<span class=\"edgtf-btn-text\">Instagram<\/span>    <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][vc_column width=&#8221;1\/3&#8243;]\t<div class=\"edgtf-call-to-action normal\" style=\"background-color: #00b4dd;\">\n\n\t\t\t\t\t<div class=\"edgtf-call-to-action-row-75-25 clearfix\" style=\"padding: 55px 15px;\">\n\t\t\t\t\t\t<div class=\"edgtf-text-wrapper edgtf-call-to-action-column1 edgtf-call-to-action-cell left\">\n\t\t\t\t\t<div class=\"edgtf-call-to-action-text\" style=\"text-align: left\"><span style=\"color: #ffffff;\">Unterst\u00fctzen Sie die Kampagne<\/span>\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-button-wrapper edgtf-call-to-action-column2 edgtf-call-to-action-cell\" style =\"text-align: right ;\">\n\t\t\t\t\t\t<a itemprop=\"url\" href=\"https:\/\/www.tiktok.com\/@alan_maladies_rares_lux\" target=\"_self\" style=\"color: #00b4dd;background-color: #ffffff;border-color: #ffffff\" class=\"edgtf-btn edgtf-btn-large edgtf-btn-solid edgtf-btn-custom-hover-bg edgtf-btn-custom-border-hover edgtf-btn-custom-hover-color\" data-hover-bg-color=\"#00b4dd\" data-hover-color=\"#ffffff\" data-hover-border-color=\"#ffffff\" >\t<span class=\"edgtf-btn-text\">TikTok<\/span>    <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][vc_column width=&#8221;1\/3&#8243;]\t<div class=\"edgtf-call-to-action normal\" style=\"background-color: #00b4dd;\">\n\n\t\t\t\t\t<div class=\"edgtf-call-to-action-row-75-25 clearfix\" style=\"padding: 55px 15px;\">\n\t\t\t\t\t\t<div class=\"edgtf-text-wrapper edgtf-call-to-action-column1 edgtf-call-to-action-cell left\">\n\t\t\t\t\t<div class=\"edgtf-call-to-action-text\" style=\"text-align: left\"><span style=\"color: #ffffff;\">Unterst\u00fctzen Sie die Kampagne<\/span>\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t<div class=\"edgtf-button-wrapper edgtf-call-to-action-column2 edgtf-call-to-action-cell\" style =\"text-align: right ;\">\n\t\t\t\t\t\t<a itemprop=\"url\" href=\"https:\/\/www.facebook.com\/alanmaladiesraresluxembourg\" target=\"_self\" style=\"color: #00b4dd;background-color: #ffffff;border-color: #ffffff\" class=\"edgtf-btn edgtf-btn-large edgtf-btn-solid edgtf-btn-custom-hover-bg edgtf-btn-custom-border-hover edgtf-btn-custom-hover-color\" data-hover-bg-color=\"#00b4dd\" data-hover-color=\"#ffffff\" data-hover-border-color=\"#ffffff\" >\t<span class=\"edgtf-btn-text\">Facebook<\/span>    <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space height=&#8221;64px&#8221;][\/vc_column][\/vc_row][vc_row content_width=&#8221;grid&#8221;][vc_column][vc_column_text css=&#8221;&#8221;]<\/p>\n<h2 style=\"text-align: center;\">Die Partner der Kampagne<\/h2>\n<p>[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;]<div class=\"edgtf-separator-holder clearfix  edgtf-separator-center\">\n\t<div class=\"edgtf-separator\" style=\"border-color: #00bcdf;width: 50px;border-bottom-width: 3px;margin-top: 25px;margin-bottom: 25px\"><\/div>\n<\/div>\n[vc_empty_space height=&#8221;14px&#8221;][vc_column_text css=&#8221;&#8221;]<img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-25545 size-full\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/alsr-200x200-1.jpg\" alt=\"\" width=\"200\" height=\"200\" \/><\/p>\n<p><a href=\"https:\/\/alsr.lu\/\"><strong>Association Luxembourgeoise du Syndrome de Rett <\/strong><\/a><\/p>\n<p>Die Luxemburger Rett-Syndrom Vereinigung (ALSR) ist eine Vereinigung von Freiwilligen, deren Ziel es ist, \u00fcber das Rett-Syndrom zu sensibilisieren, Menschen mit Rett-Syndrom und deren Familien zu unterst\u00fctzen und sich f\u00fcr die Anerkennung von Menschen mit Rett-Syndrom innerhalb der Gemeinschaft einzusetzen.<br \/>\nDas Rett-Syndrom ist eine seltene genetische Erkrankung, die haupts\u00e4chlich M\u00e4dchen betrifft und zu intellektueller Behinderung und schweren motorischen Beeintr\u00e4chtigungen f\u00fchrt.<br \/>\n[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;][\/vc_column][\/vc_row][vc_row content_width=&#8221;grid&#8221;][vc_column][vc_column_text css=&#8221;&#8221;]<img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-25545 size-full\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/logo-haerz-fir-kk.jpg\" alt=\"\" width=\"200\" height=\"200\" \/><\/p>\n<p><a href=\"https:\/\/www.kriibskrankkanner.lu\/\"><strong>Een H\u00e4erz fir kriibskrank Kanner<\/strong><\/a><\/p>\n<p>Die gemeinn\u00fctzige Elternvereinigung \u201eEen H\u00e4erz fir kriibskrank Kanner\u201c unterst\u00fctzt und begleitet Familien mit Kindern, Jugendlichen und jungen Erwachsenen die Krebs haben.[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;][\/vc_column][\/vc_row][vc_row content_width=&#8221;grid&#8221;][vc_column][vc_column_text]<img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-25545 size-full\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2022\/09\/logo-eds.jpg\" alt=\"\" width=\"200\" height=\"200\" srcset=\"https:\/\/alan.lu\/wp-content\/uploads\/2022\/09\/logo-eds.jpg 200w, https:\/\/alan.lu\/wp-content\/uploads\/2022\/09\/logo-eds-150x150.jpg 150w, https:\/\/alan.lu\/wp-content\/uploads\/2022\/09\/logo-eds-100x100.jpg 100w, https:\/\/alan.lu\/wp-content\/uploads\/2022\/09\/logo-eds-60x60.jpg 60w, https:\/\/alan.lu\/wp-content\/uploads\/2022\/09\/logo-eds-90x90.jpg 90w\" sizes=\"auto, (max-width: 200px) 100vw, 200px\" \/><\/p>\n<p><a href=\"https:\/\/edsletzebuerg.lu\/2\/\"><strong>EDS L\u00ebtzebuerg<\/strong><\/a><\/p>\n<p>EDS L\u00ebtzebuerg a.s.b.l. ist im Jahr 2021 als gemeinn\u00fctziger Verein gegr\u00fcndet worden. Zweck des Vereins ist es, die \u00d6ffentlichkeit \u00fcber das Ehlers-Danlos-Syndrom zu informieren und aufzukl\u00e4ren, zur Verbreitung von Informationen \u00fcber die Erkennungs- und Behandlungsmethoden des Syndroms zu informieren, zu beraten und Menschen mit Ehlers-Danlos-Syndrom zu unterst\u00fctzen und ihnen, sowie ihren Familien und Angeh\u00f6rigen, zu helfen.[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;][\/vc_column][\/vc_row][vc_row content_width=&#8221;grid&#8221;][vc_column][vc_column_text css=&#8221;&#8221;]<img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-25545 size-full\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2024\/09\/ALAEC200x200.jpg\" alt=\"\" width=\"200\" height=\"200\" \/><\/p>\n<p><a href=\"https:\/\/www.alaec.lu\/\"><strong>Association Luxembourgeoise d&#8217;Aide aux Enfants Cardiaques <\/strong><\/a><\/p>\n<p>Die luxemburgische Vereinigung zur Unterst\u00fctzung herzkranker Kinder (\u201eH\u00e4erzkrank Kanner zu L\u00ebtzebuerg\u201c, kurz ALAEC) wurde im Januar 2002 gegr\u00fcndet.Ihr Hauptziel ist es betroffenen Kinder und ihren Eltern an der Seite von behandelnden Kardiologen w\u00e4hrend den entscheidenden Momenten zu begleiten.<br \/>\nDies tut sie indem sie:<br \/>\n\u2022 Den Kontakt zwischen den betreffenden Personen erleichtert;<br \/>\n\u2022 Regelm\u00e4\u00dfige Treffen, Austausche und Informationsversammlungen organisiert;<br \/>\n\u2022 Die breite Masse f\u00fcr die Probleme von herzkranken Kindern sensibilisiert;<br \/>\n\u2022 Einen sozialen Beistand sowie psychologische Unterst\u00fctzung f\u00fcr Kinder und ihre Familien anbietet;<br \/>\n\u2022 Ein Angebot an Informationen auf administrativer und finanzieller Ebene bereitstellt;<br \/>\n\u2022 Die Forschung von angeborenen Herzerkrankungen unterst\u00fctzt.<br \/>\nDie luxemburgische Vereinigung zur Unterst\u00fctzung herzkranker Kinder ist per gro\u00dfherzoglichem Erlass vom 15. Januar 2022 als gemeinn\u00fctzig anerkannt. Sie hat auch am 5.12.2014 die Charte de B\u00e9n\u00e9volat unterschrieben.[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;][\/vc_column][\/vc_row][vc_row content_width=&#8221;grid&#8221;][vc_column][vc_column_text css=&#8221;&#8221;]<img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-25545 size-full\" src=\"https:\/\/alan.lu\/wp-content\/uploads\/2022\/09\/logo-waertvollt-liewen.jpg\" alt=\"\" width=\"200\" height=\"200\" \/><\/p>\n<p><a href=\"https:\/\/www.waertvollt-liewen.lu\/\"><strong>W\u00e4ertvollt Liewen<\/strong><\/a><\/p>\n<p>Die im Februar 2012 gegru\u0308ndete Vereinigung \u00ab W\u00e4ertvollt Liewen \u00bb e.V. dient als Bindeglied zwischen Personen, die an ALS oder einer \u00e4hnlichen Pathologie erkrankt sind, und den Autorit\u00e4ten im sozialen, medizinischen und assoziativen Bereich. &#8220;W\u00e4ertvollt Liewen&#8221; e.V. m\u00f6chte im Gro\u00dfherzogtum Luxemburg am Aufbau eines nationalen Referenz- und Kompetenznetzwerks fu\u0308r Patienten mitwirken, die an einer Amyotrophen Lateralsklerose (ALS) oder einer \u00e4hnlichen Pathologie erkrankt sind.[\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row content_width=&#8221;grid&#8221;][vc_column][vc_column_text css=&#8221;&#8221;] Die \u201eRare Rewind\u201c Kampagne [\/vc_column_text][vc_empty_space height=&#8221;14px&#8221;][vc_empty_space height=&#8221;14px&#8221;][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text css=&#8221;&#8221;]Anfang Oktober 2024 startete die gemeinn\u00fctzige Vereinigung und nationale Allianz f\u00fcr Menschen, die in Luxemburg von einer seltenen Erkrankung betroffen&#8230;<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"give_campaign_id":0,"inline_featured_image":false,"footnotes":""},"class_list":["post-29632","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rare Rewind, - ALAN<\/title>\n<meta name=\"description\" content=\"This year for Rare Disease Day ALAN and its partners focus their campaign on two actions: the \u201cGlobal Chain of Lights\u201d and the photo exhibition \u201cRaReflections. 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