{"id":21711,"date":"2020-10-06T17:03:10","date_gmt":"2020-10-06T15:03:10","guid":{"rendered":"https:\/\/alan.wearequattro.com\/events\/rare-disease-day-2021-2\/"},"modified":"2021-02-19T17:45:05","modified_gmt":"2021-02-19T16:45:05","slug":"journee-des-maladies-rares","status":"publish","type":"ajde_events","link":"https:\/\/alan.lu\/fr\/events\/journee-des-maladies-rares\/","title":{"rendered":"Journ\u00e9e des Maladies Rares"},"content":{"rendered":"<p>Chaque ann\u00e9e EURORDIS organise la Journ\u00e9e des Maladies Rares dans le monde entier. Le dernier jour de f\u00e9vrier et pendant toute une journ\u00e9e, le public et les d\u00e9cideurs du monde politique, du monde des entrepreneurs, de l&#8217;administration, mais aussi les professionnels de la sant\u00e9 et les chercheurs du monde entier seront inform\u00e9s et sensibilis\u00e9s aux maladies rares et \u00e0 leur importance pour les personnes concern\u00e9es.<\/p>\n<p>En raison de la pand\u00e9mie COVID-19 des \u00e9v\u00e9nements de rassemblement ne seront pas possibles en 2021. Ainsi la communaut\u00e9 des maladies rares a d\u00e9cid\u00e9 de concentrer ses efforts sur l\u2019illumination de b\u00e2timents publiques, embl\u00e9matiques et des monuments \u00e0 travers le monde entier dont le but est de briser l&#8217;isolement des personnes concern\u00e9es par une maladie rare, d\u2019exprimer notre solidarit\u00e9 et de sensibiliser.<\/p>\n<p>Pour l\u2019action \u00ab Light It Up \u00bb au Luxembourg de multiples b\u00e2timents phares seront illumin\u00e9s dans les couleurs du Rare Disease Day (bleu, rose, vert, violet) la derni\u00e8re semaine en f\u00e9vrier 2021, dont :<\/p>\n<ul>\n<li>Ville de Luxembourg : le Ch\u00e2teau d&#8217;Eau au ban de Gasperich<\/li>\n<li>Ville d\u2019Esch-sur-Alzette : l\u2019H\u00f4tel de Ville et les hauts fourneaux de Belval<\/li>\n<li>Ettelbruck : le CAPE &#8211; Centre des Arts Pluriels Ettelbruck<\/li>\n<li>Mamer : le Mamer Schlass et la Maison Citoyenne<\/li>\n<li>Wiltz : le Ch\u00e2teau de Wiltz<\/li>\n<li>Schengen : les Colonnes des Nations<\/li>\n<li>Le Centre Hospitaler de Luxembourg<\/li>\n<li>Le Centre Hospitalier Emile Mayrisch<\/li>\n<\/ul>\n<p>Le lancement officiel de l\u2019action \u00ab Light It Up \u00bb aura lieu le 24 f\u00e9vrier 2021 \u00e0 19h00 avec l\u2019illumination de Ch\u00e2teau d\u2019Eau au ban de Gasperich en pr\u00e9sence de <strong>Madame Paulette Lenert, Ministre de la Sant\u00e9, et Madame Lydie Polfer, Bourgmestre de la Ville de Luxembourg.<\/strong><\/p>\n<p>L\u2019illumination des b\u00e2timents sera accompagn\u00e9e d\u2019une campagne intensive sur les r\u00e9seaux sociaux, men\u00e9e par l\u2019a.s.b.l. ALAN &#8211; Maladies Rares Luxembourg et son partenaire le Centre Hospitalier du Nord.<\/p>\n","protected":false},"author":1,"featured_media":21712,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"give_campaign_id":0,"inline_featured_image":false},"tags":[],"event_type":[83],"event_type_2":[],"class_list":["post-21711","ajde_events","type-ajde_events","status-publish","has-post-thumbnail","hentry","event_location-dans-le-monde-entier","event_organizer-eurordis-alan","event_type-public-event"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Journ\u00e9e des Maladies Rares - ALAN<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alan.lu\/fr\/events\/journee-des-maladies-rares\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Journ\u00e9e des Maladies Rares - ALAN\" \/>\n<meta property=\"og:description\" content=\"Chaque ann\u00e9e EURORDIS organise la Journ\u00e9e des Maladies Rares dans le monde entier. 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