{"id":20691,"date":"2020-11-17T13:22:50","date_gmt":"2020-11-17T12:22:50","guid":{"rendered":"https:\/\/alan.wearequattro.com\/testimonials\/testimonials-jean-paul\/"},"modified":"2021-03-16T09:23:56","modified_gmt":"2021-03-16T08:23:56","slug":"temoignages-jean-paul","status":"publish","type":"page","link":"https:\/\/alan.lu\/fr\/temoignages\/temoignages-jean-paul\/","title":{"rendered":"T\u00e9moignages"},"content":{"rendered":"

[vc_row content_width=”grid” css=”.vc_custom_1492696696810{padding-top: 130px !important;padding-bottom: 90px !important;}”][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″][vc_single_image image=”21886″ img_size=”full”][vc_empty_space height=”35px”][\/vc_column][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″]

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Jean-Paul<\/h2>\n

[\/vc_column_text][vc_column_text]55 ans, vit avec une malformation d’Arnold-Chiari type I<\/strong>[\/vc_column_text][vc_empty_space height=”35px”][vc_column_text]”Je m’appelle Jean-Paul. J’ai 55 ans, je suis mari\u00e9 et j’ai une fille merveilleuse.<\/p>\n

J’ai toujours fait beaucoup de sport. J’ai jou\u00e9 au football et j’ai m\u00eame \u00e9t\u00e9 arbitre et entra\u00eeneur pendant quelques ann\u00e9es. Je courais aussi beaucoup, faisais du v\u00e9lo, nageais et allais r\u00e9guli\u00e8rement au centre de fitness. J’ai aussi particip\u00e9 \u00e0 des courses de 10 km, des semi-marathons, des duathlons et des triathlons.<\/p>\n

Apr\u00e8s avoir eu un accident en 2003 et des maux de dos, de cou et de t\u00eate de plus en plus fr\u00e9quents, j’ai \u00e9t\u00e9 examin\u00e9e et trait\u00e9e par diff\u00e9rents m\u00e9decins, physioth\u00e9rapeutes et psychoth\u00e9rapeutes. En 2005, on m’a finalement diagnostiqu\u00e9 une malformation d’Arnold Chiari de type I.<\/p>\n

La malformation de Chiari est une anomalie structurelle du cervelet, qui se caract\u00e9rise par les sympt\u00f4mes suivants : maux de t\u00eate, dysphagie, naus\u00e9es, vertige, douleurs au cou, d\u00e9marche instable, mauvaise coordination des mains et fourmillements ou engourdissement aux mains et pieds. Les sympt\u00f4mes suivants peuvent \u00e9galement appara\u00eetre : rythme cardiaque lent ou rapide, probl\u00e8mes de la colonne vert\u00e9brale et respiration anormale telle que l’apn\u00e9e centrale du sommeil, caract\u00e9ris\u00e9e par des p\u00e9riodes d’arr\u00eat de la respiration pendant le sommeil. Dans les cas graves, la maladie peut \u00e9galement entra\u00eener une paralysie.<\/p>\n

Alors que je faisais entre 12 et 20 heures de sport par semaine jusqu’en 2003, j’ai aujourd’hui du mal \u00e0 faire quelque sport que ce soit. J\u2019en fait uniquement (me promener \u00e0 pied ou \u00e0 v\u00e9lo) quand je n\u2019ai pas trop mal.<\/p>\n

\u00c0 cause de nouvelles complications de sant\u00e9, j’ai d\u00e9cid\u00e9 de contacter ALAN – Maladies Rares Luxembourg au d\u00e9but de cette ann\u00e9e. J’ai re\u00e7u un soutien inestimable et j’apprends \u00e0 faire face diff\u00e9remment \u00e0 ma maladie. Par exemple, j’ai commenc\u00e9 \u00e0 faire des exercices quotidiens comme le Yin Yoga ou la Relaxation Progressive.<\/p>\n

Je partage mon histoire pour faire appel \u00e0 ne pas juger les personnes qui semblent avoir des difficult\u00e9s physiques ou mentales, car ces personnes peuvent avoir une maladie rare ou d\u2019autre probl\u00e8mes de sant\u00e9 chronique. Soyez ouvert et ne jugez pas les autres en fonction de leur apparence ou de leurs capacit\u00e9s, car vous aussi pourriez d\u00e9velopper une maladie \u00e0 un moment donn\u00e9. J’esp\u00e8re qu\u2019au future les personnes vivant avec une maladie rare ou chronique seront confront\u00e9es \u00e0 moins de jugement et \u00e0 plus de compr\u00e9hension.”[\/vc_column_text]\t\t<\/div>\n\t<\/div>\n\t<\/div><\/div>[\/vc_column][\/vc_row][vc_row content_width=”grid” css=”.vc_custom_1596118384380{padding-top: 36px !important;padding-bottom: 41px !important;background-color: #ee3f75 !important;}”][vc_column css=”.vc_custom_1492609383973{padding-top: 2px !important;}”]\t

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Contactez-nous en cas de questions ou besoin d\u2019assistance<\/span><\/h2>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\tContact<\/span> <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

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