{"id":20693,"date":"2020-09-23T14:00:59","date_gmt":"2020-09-23T12:00:59","guid":{"rendered":"https:\/\/alan.wearequattro.com\/testimonials\/testimonials-jessica\/"},"modified":"2021-01-27T14:12:01","modified_gmt":"2021-01-27T13:12:01","slug":"temoignages-jessica","status":"publish","type":"page","link":"https:\/\/alan.lu\/fr\/temoignages\/temoignages-jessica\/","title":{"rendered":"T\u00e9moignages"},"content":{"rendered":"

[vc_row content_width=”grid” css=”.vc_custom_1492696696810{padding-top: 130px !important;padding-bottom: 90px !important;}”][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″][vc_single_image image=”20668″ img_size=”full”][vc_empty_space height=”35px”][\/vc_column][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″]

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Jessica<\/h2>\n

[\/vc_column_text][vc_column_text]37 ans, vit avec le syndrome d’Ehlers-Danlos<\/strong>[\/vc_column_text][vc_empty_space height=”35px”][vc_column_text]”Depuis ma naissance, j’ai de l’asthme et beaucoup d’allergies. \u00c0 6 ans, j’ai commenc\u00e9 \u00e0 avoir mal au dos et aux \u00e9paules. Mais comme vous l\u2019avez probablement devin\u00e9, les m\u00e9decins ne m\u2019ont pas pris au s\u00e9rieux. Chaque fois que je devais soulever quelque chose de lourd, je me disloquais l’\u00e9paule.<\/p>\n

Pendant ma pubert\u00e9, j’ai eu multiples entorses de genoux en faisant du sport. Alors, j’ai arr\u00eat\u00e9 de faire du sport. Mais ce n\u2019\u00e9tait pas suffisant. M\u00eame marcher avec des chaussures plates posait un probl\u00e8me : je n’arr\u00eatais pas de me tordre la cheville et faire des entorses du pied. De l\u00e0, les probl\u00e8mes avec mes articulations se sont multipli\u00e9s : poignets, hanches, etc.<\/p>\n

Apr\u00e8s avoir eu mon deuxi\u00e8me enfant, ma sant\u00e9 a d\u00e9clin\u00e9. Mais je sentais que je ne pouvais le dire \u00e0 personne parce que jusque-l\u00e0 personne n\u2019avait cru que la douleur \u00e9tait r\u00e9elle. C’\u00e9tait de ma faute parce que je bouge et rigole trop. Pourtant je pleure aussi – de douleur. Mais seulement quand je suis seule. \u00c0 33 ans, j’ai eu un cancer. \u00c0 35 ans, j’ai subi une op\u00e9ration au genou rat\u00e9e. \u00c0 36 ans, j’ai subi une chirurgie du dos et de la nuque. Puis, sur recommandation, j\u2019ai vu un m\u00e9decin formidable qui a finalement poser le diagnostic de Syndrome d’Ehlers-Danlos (EDS), une maladie g\u00e9n\u00e9tique affectant le tissu conjonctif. J’\u00e9tais tellement soulag\u00e9e d’avoir enfin un nom qui explique mes sympt\u00f4mes !!! J’ai commenc\u00e9 \u00e0 \u00e9changer avec d’autres personnes vivant avec EDS et je ne me sentais moins seule.<\/p>\n

J’ai re\u00e7u du soutien psychologique d’ALAN, ce qui m’a aid\u00e9 \u00e0 g\u00e9rer un certain nombre de probl\u00e8mes. La douleur chronique et les traumatismes infantiles non trait\u00e9s sont un m\u00e9lange toxique.<\/p>\n

Actuellement, mon corps est maintenu par des produits orthop\u00e9diques, des gants et bas de compression tr\u00e8s sexy. J’utilise un b\u00e2ton pour marcher et peut-\u00eatre bient\u00f4t un fauteuil roulant. La maladie a aussi provoqu\u00e9 des probl\u00e8mes de digestion, des vaisseaux sanguins et de la peau.<\/p>\n

Malheureusement, mes enfants commencent \u00e9galement \u00e0 pr\u00e9senter des sympt\u00f4mes. Mais au moins on sait pourquoi. Quand j’avais leur \u00e2ge, personne ne me croyait. Au d\u00e9but, j’ai toujours ressenti le besoin d’expliquer pourquoi je ne me sentais pas bien ou pourquoi je boitais, etc. Mais maintenant je m’en fiche. La maladie est l\u00e0 et elle ne va nulle part.<\/p>\n

Les derni\u00e8res ann\u00e9es n’ont pas \u00e9t\u00e9 faciles. Mais j’ai un partenaire de vie et des enfants incroyables qui me soutiennent et me donnent toute la force dont j’ai besoin pour continuer \u00e0 me battre. Ensemble, nous pouvons tout surmonter.”[\/vc_column_text]\t\t<\/div>\n\t<\/div>\n\t<\/div><\/div>[\/vc_column][\/vc_row][vc_row content_width=”grid” css=”.vc_custom_1596118384380{padding-top: 36px !important;padding-bottom: 41px !important;background-color: #ee3f75 !important;}”][vc_column css=”.vc_custom_1492609383973{padding-top: 2px !important;}”]\t

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Contactez-nous en cas de questions ou besoin d\u2019assistance<\/span><\/h2>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\tContact<\/span> <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

[vc_row content_width=”grid” css=”.vc_custom_1492696696810{padding-top: 130px !important;padding-bottom: 90px !important;}”][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″][vc_single_image image=”20668″ img_size=”full”][vc_empty_space height=”35px”][\/vc_column][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″][\/vc_column][\/vc_row][vc_row content_width=”grid” css=”.vc_custom_1596118384380{padding-top: 36px !important;padding-bottom: 41px !important;background-color: #ee3f75 !important;}”][vc_column css=”.vc_custom_1492609383973{padding-top: 2px !important;}”][\/vc_column][\/vc_row]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":20667,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"give_campaign_id":0,"inline_featured_image":false,"footnotes":""},"class_list":["post-20693","page","type-page","status-publish","hentry"],"yoast_head":"\nT\u00e9moignages - ALAN<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alan.lu\/fr\/temoignages\/temoignages-jessica\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"T\u00e9moignages - 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