{"id":20699,"date":"2020-09-23T14:09:54","date_gmt":"2020-09-23T12:09:54","guid":{"rendered":"https:\/\/alan.wearequattro.com\/testimonials\/testimonials-noemie\/"},"modified":"2021-01-27T14:12:01","modified_gmt":"2021-01-27T13:12:01","slug":"temoignages-noemie","status":"publish","type":"page","link":"https:\/\/alan.lu\/fr\/temoignages\/temoignages-noemie\/","title":{"rendered":"T\u00e9moignages"},"content":{"rendered":"

[vc_row content_width=”grid” css=”.vc_custom_1492696696810{padding-top: 130px !important;padding-bottom: 90px !important;}”][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″][vc_single_image image=”20673″ img_size=”full”][vc_empty_space height=”35px”][\/vc_column][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″]

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No\u00e9mie<\/h2>\n

[\/vc_column_text][vc_column_text]43 ans, vit avec la scl\u00e9rose lat\u00e9rale amyotrophique (SLA)<\/strong>[\/vc_column_text][vc_empty_space height=”35px”][vc_column_text]”Je suis No\u00e9mie. J\u2019ai 43 ans et je suis maman de 4 enfants. Depuis quelques ann\u00e9es je vis avec la SLA. SLA ou \u00ab scl\u00e9rose lat\u00e9rale amyotrophique \u00bb est une maladie neuromusculaire incurable qui m\u00e8ne peu \u00e0 peu \u00e0 la paralysie de tous les muscles du corps, y compris les jambes, les bras, le tronc, le visage et la langue. De m\u00eame, les muscles n\u00e9cessaires \u00e0 la d\u00e9glutition, \u00e0 la parole et malheureusement aussi ceux n\u00e9cessaires \u00e0 la respiration cessent lentement de fonctionner.<\/p>\n

Au stade final, vous devez compter sur l\u2019aide d\u2019autres personnes et avez besoin d\u2019une sonde gastrique et d\u2019un ventilateur. Pour environ 90% des patients atteints de SLA, la maladie \u00e9volue rapidement avec une survie moyenne de 3 \u00e0 5 ans apr\u00e8s le d\u00e9but de la maladie, sauf si on est nourri et ventil\u00e9 artificiellement.<\/p>\n

J’ai la chance d’\u00eatre parmi les 10% des patients dont la maladie \u00e9volue tr\u00e8s lentement. Le c\u00e9l\u00e8bre astrophysicien Stephen Hawking \u00e9tait aussi atteint de cette forme de SLA. Il a v\u00e9cu plus de 50 ans avec la SLA jusqu’\u00e0 son d\u00e9c\u00e8s en 2018.<\/p>\n

Il est tr\u00e8s important pour moi de vivre une vie aussi \u00ab normale \u00bb que possible. M\u00eame si je dois utiliser un fauteuil roulant et un ventilateur pour m’aider \u00e0 respirer la nuit, je suis capable de vivre une vie assez normale. Evidemment, ma \u00ab nouvelle \u00bb vie est diff\u00e9rente, mais elle est toujours belle et absolument digne d’\u00eatre v\u00e9cue. Je ne peux plus monter \u00e0 cheval, faire du ski ou des randonn\u00e9es dans les Alpes. Mais je peux faire la course sur les pistes cyclables avec mon fauteuil roulant \u00e9lectrique qui est tr\u00e8s sportif et rapide ?<\/p>\n

En tant que chanteuse d’op\u00e9ra, je suis \u00e9videmment tr\u00e8s heureuse d’avoir pu garder ma voix jusqu’\u00e0 maintenant. Je peux toujours chanter de tout mon c\u0153ur, de toute mon \u00e2me. Je le fais simplement assis dans mon fauteuil roulant.<\/p>\n

Je suis \u00e9galement tr\u00e8s heureuse de pouvoir encore parler et manger par moi-m\u00eame. Bien s\u00fbr, j’ai peur du progr\u00e8s de la maladie. J’essaie de ne pas trop y penser, mais de vivre au pr\u00e9sent, en suivant la devise \u00ab Carpe Diem\u00bb – cueille le jour. Ne regardez pas en arri\u00e8re sur les choses que vous ne pouvez plus faire, et ne regardez pas trop loin dans un avenir qui vous fait peur.<\/p>\n

Ma strat\u00e9gie : vivre dans le PRESENT et profiter au maximum.<\/p>\n

J’esp\u00e8re que je pourrai garder ma voix le plus longtemps possible et que la maladie continuera de progresser aussi lentement.<\/p>\n

CARPE DIEM et NEVER GIVE UP”[\/vc_column_text]\t\t<\/div>\n\t<\/div>\n\t<\/div><\/div>[\/vc_column][\/vc_row][vc_row content_width=”grid” css=”.vc_custom_1596118384380{padding-top: 36px !important;padding-bottom: 41px !important;background-color: #ee3f75 !important;}”][vc_column css=”.vc_custom_1492609383973{padding-top: 2px !important;}”]\t

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Contactez-nous en cas de questions ou besoin d\u2019assistance<\/span><\/h2>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\tContact<\/span> <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

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