{"id":29332,"date":"2024-04-30T10:22:52","date_gmt":"2024-04-30T08:22:52","guid":{"rendered":"https:\/\/alan.lu\/?page_id=29332"},"modified":"2024-04-30T10:22:53","modified_gmt":"2024-04-30T08:22:53","slug":"temoignages-samia","status":"publish","type":"page","link":"https:\/\/alan.lu\/fr\/temoignages\/temoignages-samia\/","title":{"rendered":"T\u00e9moignages"},"content":{"rendered":"

[vc_row content_width=”grid” css=”.vc_custom_1492696696810{padding-top: 130px !important;padding-bottom: 90px !important;}”][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″][vc_single_image image=”29336″ img_size=”full”][vc_empty_space height=”35px”][\/vc_column][vc_column offset=”vc_col-lg-6 vc_col-md-6 vc_col-xs-12″]

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Samia<\/h2>\n

[\/vc_column_text][vc_column_text]son fr\u00e8re Mehdi vivait avec la neurofibormatose<\/strong>[\/vc_column_text][vc_empty_space height=”35px”][vc_column_text]\u00ab Enfant, Mehdi a toujours \u00e9t\u00e9 une \u00e2me cr\u00e9ative et imaginative. Il aimait se d\u00e9guiser et surtout me faire peur. Sa p\u00e9riode pr\u00e9f\u00e9r\u00e9e de l’ann\u00e9e \u00e9tait Halloween. Son artiste pr\u00e9f\u00e9r\u00e9, Michael Jackson. \u00c0 l\u2019\u00e2ge de trois ans, il savait faire le moonwalk.<\/p>\n

Mehdi a re\u00e7u un diagnostic de neurofibromatose (NF) lorsqu’il \u00e9tait b\u00e9b\u00e9. La NF est une maladie g\u00e9n\u00e9tique qui fait r\u00e9f\u00e9rence \u00e0 trois affections diff\u00e9rentes impliquant le d\u00e9veloppement de tumeurs pouvant affecter le cerveau, la moelle \u00e9pini\u00e8re et les nerfs qui envoient des signaux entre le cerveau et la moelle \u00e9pini\u00e8re, ainsi que toutes les autres parties du corps.<\/p>\n

\u00c0 l\u2019\u00e2ge de 12 ans, il a eu une tumeur au cerveau qui s\u2019est av\u00e9r\u00e9e b\u00e9nigne. Le m\u00e9decin a pu l\u2019a retir\u00e9 sans complications. Il ne s’est jamais plaint une seule fois. Il en a eu une autre dans le torse qui a \u00e9galement \u00e9t\u00e9 retir\u00e9. Plus tard, un sarcome s\u2019est d\u00e9velopp\u00e9 \u00e0 l\u2019int\u00e9rieur de sa cuisse gauche, cette fois, il ne s\u2019en est pas occup\u00e9 tout de suite. Sa jambe \u00e9tait enfl\u00e9e. Lorsque mes parents l\u2019ont appris, il \u00e9tait trop tard. La tumeur \u00e9tait devenue trop grosse et n\u2019\u00e9tait plus possible d\u2019op\u00e9rer. Nous avons \u00e9t\u00e9 d\u00e9vast\u00e9s. Nous ne savions pas qu’il ne survivrait pas. Il me manque terriblement.<\/p>\n

En 2007, Mehdi m\u2019a rejoint \u00e0 Los Angeles, o\u00f9 il s\u2019est inscrit \u00e0 la NY Film Academy School. Au d\u00e9part, il voulait \u00eatre acteur, puis s’est tourn\u00e9 vers la r\u00e9alisation. Il a obtenu son baccalaur\u00e9at en beaux-arts en cin\u00e9ma en septembre 2015. Avant d’obtenir son dipl\u00f4me, il a r\u00e9alis\u00e9 une courte vid\u00e9o sur sa vie et sa maladie. Je l’ai regard\u00e9 les larmes aux yeux, rempli de fiert\u00e9 pour tout ce que mon petit fr\u00e8re avait accompli en si peu de temps. Je savais qu’il \u00e9tait destin\u00e9 \u00e0 de grandes et belles choses. Malheureusement, la vie de Mehdi a \u00e9t\u00e9 tragiquement \u00e9court\u00e9e et il est d\u00e9c\u00e9d\u00e9 le 18 janvier 2018, \u00e0 l’\u00e2ge de 28 ans.<\/p>\n

En m\u00e9moire de mon fr\u00e8re ange, je veux faire prendre conscience aux familles du danger et de la gravit\u00e9 de cette maladie. En tant que membre du conseil d’administration europ\u00e9en de la Children’s Tumor Foundation<\/a>, nous avons pour objectif de sensibiliser et de collecter des fonds pour trouver un rem\u00e8de.<\/p>\n

Mehdi \u00e9tait un h\u00e9ros, NF Avenger, un beau jeune homme ador\u00e9 de tant de personnes. Parti bien trop t\u00f4t.\u00a0\u00bb<\/p>\n

Samia<\/em>[\/vc_column_text]\t\t<\/div>\n\t<\/div>\n\t<\/div><\/div>[\/vc_column][\/vc_row][vc_row content_width=”grid” css=”.vc_custom_1596118384380{padding-top: 36px !important;padding-bottom: 41px !important;background-color: #ee3f75 !important;}”][vc_column css=”.vc_custom_1492609383973{padding-top: 2px !important;}”]\t

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Contactez-nous en cas de questions ou besoin d\u2019assistance<\/span><\/h2>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\tContact<\/span> <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

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