{"id":31869,"date":"2026-06-05T13:22:20","date_gmt":"2026-06-05T11:22:20","guid":{"rendered":"https:\/\/alan.lu\/?page_id=31869"},"modified":"2026-06-16T11:40:00","modified_gmt":"2026-06-16T09:40:00","slug":"fiches-information-maladies-rares","status":"publish","type":"page","link":"https:\/\/alan.lu\/fr\/fiches-information-maladies-rares\/","title":{"rendered":"Fiches d\u2019Information Maladies Rares"},"content":{"rendered":"

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Fiches d\u2019Information Maladies Rares<\/h2>\n

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<\/div>\n<\/div>\n[\/vc_column][\/vc_row][vc_row content_width=”grid”][vc_column][vc_column_text css=””]Vivre avec une maladie rare peut soulever de nombreuses questions concernant des droits sociaux, les aides disponibles et les d\u00e9marches administratives. Nos fiches d\u2019information ont \u00e9t\u00e9 \u00e9labor\u00e9es pour vous aider \u00e0 vous orienter dans ces situations en vous fournissant des informations claires et pratiques.<\/p>\n

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Chaque fiche traite de situations sp\u00e9cifiques, en pr\u00e9sentant les d\u00e9marches \u00e0 suivre, les services ou professionnels vers lesquels se tourner, ainsi que les ressources auxquelles vous pouvez avoir acc\u00e8s au Luxembourg. Elabor\u00e9es par notre \u00e9quipe d\u2019assistants sociaux et de psychologues, ces fiches sont bas\u00e9es sur les questions et les difficult\u00e9s les plus fr\u00e9quemment rencontr\u00e9es par les personnes et familles concern\u00e9es par une maladie rare.[\/vc_column_text][vc_empty_space height=”50px”]

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    Fiche d\u2019Information \u00ab Aides g\u00e9n\u00e9rales pour adultes \u00bb<\/a><\/h3>\n<\/li>\n
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    Fiche d\u2019Information \u00ab Aides g\u00e9n\u00e9rales pour enfants \u00bb<\/a><\/h3>\n<\/li>\n
  3. \n

    Fiche d\u2019Information \u00ab Travail \u00bb<\/a><\/h3>\n<\/li>\n
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    Fiche d\u2019Information \u00ab \u00c9cole \u00bb<\/a><\/h3>\n<\/li>\n
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    Fiche d\u2019Information \u00ab Traitements \u00e0 l’\u00e9tranger \u00bb<\/a><\/h3>\n<\/li>\n
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    Fiche d\u2019Information \u00ab Transport dans le cadre d\u2019un suivi m\u00e9dical au Luxembourg \u00bb<\/a><\/h3>\n<\/li>\n
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    Fiche d\u2019Information \u00ab Tests g\u00e9n\u00e9tiques \u00bb<\/a><\/h3>\n<\/li>\n
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    Fiche d\u2019Information \u00ab Pr\u00e9paration pour consultation m\u00e9dicale \u00bb<\/a><\/h3>\n<\/li>\n<\/ol>\n<\/div>[vc_empty_space height=”50px”][vc_column_text css=””]Les informations contenues dans ces fiches sont fournies \u00e0 titre purement indicatif et ne constituent pas un conseil juridique. Elles refl\u00e8tent la r\u00e9glementation en vigueur \u00e0 la date de publication et sont susceptibles d’\u00e9voluer. Notre association ne saurait \u00eatre tenue responsable de toute d\u00e9cision prise sur la base de ces informations.<\/em>[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space height=”50px”][\/vc_column][\/vc_row][vc_row content_width=”grid” css=”.vc_custom_1601640129370{padding-top: 36px !important;padding-bottom: 41px !important;}” el_id=”wrapper-contact-next-btn”][vc_column width=”1\/2″ el_id=”wrapper-contact-next-col-1″]\t
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    Contactez-nous en cas de questions ou besoin d\u2019assistance<\/span>\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t
    \n\t\t\t\t\t\t\tContact<\/span> <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][vc_column width=”1\/2″]\t
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    Qu’est-ce qu’une maladie rare ?<\/span>\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t\t\t
    \n\t\t\t\t\t\t\tEn savoir plus<\/span> <\/a>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n[\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

    [vc_row][vc_column][vc_column_text css=””] Fiches d\u2019Information Maladies Rares [\/vc_column_text][\/vc_column][\/vc_row][vc_row content_width=”grid”][vc_column][vc_column_text css=””]Vivre avec une maladie rare peut soulever de nombreuses questions concernant des droits sociaux, les aides disponibles et les d\u00e9marches administratives. Nos…<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"give_campaign_id":0,"inline_featured_image":false,"footnotes":""},"class_list":["post-31869","page","type-page","status-publish","hentry"],"yoast_head":"\nFiches d\u2019Information Maladies Rares Maladies Rares Luxembourg - ALAN<\/title>\n<meta name=\"description\" content=\"Fiches d\u2019Information Maladies Rares\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alan.lu\/fr\/fiches-information-maladies-rares\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Fiches d\u2019Information Maladies Rares Maladies Rares Luxembourg - ALAN\" \/>\n<meta property=\"og:description\" content=\"Fiches d\u2019Information Maladies Rares\" \/>\n<meta property=\"og:url\" content=\"https:\/\/alan.lu\/fr\/fiches-information-maladies-rares\/\" \/>\n<meta property=\"og:site_name\" content=\"ALAN\" \/>\n<meta property=\"article:modified_time\" content=\"2026-06-16T09:40:00+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/alan.lu\\\/fr\\\/fiches-information-maladies-rares\\\/\",\"url\":\"https:\\\/\\\/alan.lu\\\/fr\\\/fiches-information-maladies-rares\\\/\",\"name\":\"Fiches d\u2019Information Maladies Rares Maladies Rares Luxembourg - 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