{"id":21133,"date":"2020-08-14T16:43:23","date_gmt":"2020-08-14T14:43:23","guid":{"rendered":"https:\/\/alan.wearequattro.com\/covid-19-and-rare-disease-message-from-dr-michel-hoffmann\/"},"modified":"2021-01-27T14:10:29","modified_gmt":"2021-01-27T13:10:29","slug":"covid-19-et-maladies-rares-message-du-dr-michel-hoffmann","status":"publish","type":"post","link":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/","title":{"rendered":"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row][vc_column width=&#8221;1\/2&#8243;][vc_column_text]En ce temps d\u2019incertitude et de d\u00e9sinformation li\u00e9es \u00e0 la pand\u00e9mie COVID-19, nous avons demand\u00e9 \u00e0 Dr Michel Hoffmann, membre du Conseil Scientifique d\u2018ALAN, neurologue au Centre Hospitalier du Nord et membre du Committee for Orphan Medicinal Products \u00e0 l\u2019Agence Europ\u00e9enne des M\u00e9dicaments (EMA), s\u2019il y a des particularit\u00e9s auxquelles les personnes affect\u00e9es par une maladie rare doivent pr\u00eater attention.<\/p>\n<p>Dr Hoffmann : &#8220;Vivre avec une maladie rare est souvent associ\u00e9 \u00e0 un risque accru de subir une complication suite \u00e0 une autre maladie grave.<\/p>\n<p>Etre victime d`une infection par le virus COVID-19 constitue un danger surtout pour les patients vivant avec une maladie m\u00e9tabolique rare, un d\u00e9ficit immunitaire, soit li\u00e9 \u00e0 leur maladie soit li\u00e9 \u00e0 un traitement indispensable, ou pour les patients avec une faiblesse respiratoire. Les personnes \u00e2g\u00e9es sont d`autant plus vuln\u00e9rables.[\/vc_column_text][vc_empty_space height=&#8221;40px&#8221;][\/vc_column][vc_column width=&#8221;1\/2&#8243;]\n<blockquote class=\"edgtf-blockquote-shortcode\"  >\n\t<span class=\"edgtf-blockquote-text\">\n\t\tVivre avec une maladie rare est souvent associ\u00e9 \u00e0 un risque accru de subir une complication suite \u00e0 une autre maladie grave.\t<\/span>\n<\/blockquote>[vc_empty_space height=&#8221;30px&#8221;][vc_column_text]Dans la situation exceptionnelle de la pand\u00e9mie COVID-19, il est tr\u00e8s important de ne pas prendre des m\u00e9dicaments en dehors du traitement habituel ni d`arr\u00eater une th\u00e9rapie indispensable sans en avoir parl\u00e9 avec le m\u00e9decin traitant qui conna\u00eet bien votre maladie rare.<\/p>\n<p>De m\u00eame, il est extr\u00eamement important de respecter les gestes barri\u00e8res et les recommandations d`isolement social comme pr\u00e9conis\u00e9 par le Minist\u00e8re de la Sant\u00e9.&#8221;[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>En ce temps d\u2019incertitude et de d\u00e9sinformation li\u00e9es \u00e0 la pand\u00e9mie COVID-19, nous avons demand\u00e9 \u00e0 Dr Michel Hoffmann, s\u2019il y a des particularit\u00e9s auxquelles les personnes affect\u00e9es par une maladie rare doivent pr\u00eater attention. <\/p>\n","protected":false},"author":1,"featured_media":21134,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"inline_featured_image":false,"footnotes":""},"categories":[122],"tags":[],"class_list":["post-21133","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-covid-19-fr"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann - ALAN<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann - ALAN\" \/>\n<meta property=\"og:description\" content=\"En ce temps d\u2019incertitude et de d\u00e9sinformation li\u00e9es \u00e0 la pand\u00e9mie COVID-19, nous avons demand\u00e9 \u00e0 Dr Michel Hoffmann, s\u2019il y a des particularit\u00e9s auxquelles les personnes affect\u00e9es par une maladie rare doivent pr\u00eater attention.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/\" \/>\n<meta property=\"og:site_name\" content=\"ALAN\" \/>\n<meta property=\"article:published_time\" content=\"2020-08-14T14:43:23+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2021-01-27T13:10:29+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1300\" \/>\n\t<meta property=\"og:image:height\" content=\"845\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Quattro\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Quattro\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/\"},\"author\":{\"name\":\"Quattro\",\"@id\":\"https:\/\/alan.lu\/fr\/#\/schema\/person\/5869442239d979f9faed6e70b7b9aa22\"},\"headline\":\"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann\",\"datePublished\":\"2020-08-14T14:43:23+00:00\",\"dateModified\":\"2021-01-27T13:10:29+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/\"},\"wordCount\":293,\"image\":{\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg\",\"articleSection\":[\"COVID-19\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/\",\"url\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/\",\"name\":\"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann - ALAN\",\"isPartOf\":{\"@id\":\"https:\/\/alan.lu\/fr\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg\",\"datePublished\":\"2020-08-14T14:43:23+00:00\",\"dateModified\":\"2021-01-27T13:10:29+00:00\",\"author\":{\"@id\":\"https:\/\/alan.lu\/fr\/#\/schema\/person\/5869442239d979f9faed6e70b7b9aa22\"},\"breadcrumb\":{\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#primaryimage\",\"url\":\"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg\",\"contentUrl\":\"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg\",\"width\":1300,\"height\":845},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Accueil\",\"item\":\"https:\/\/alan.lu\/fr\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/alan.lu\/fr\/#website\",\"url\":\"https:\/\/alan.lu\/fr\/\",\"name\":\"ALAN\",\"description\":\"Rare Diseases Luxembourg\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/alan.lu\/fr\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/alan.lu\/fr\/#\/schema\/person\/5869442239d979f9faed6e70b7b9aa22\",\"name\":\"Quattro\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/alan.lu\/fr\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/a015d4268c2e527edabfbbb81385e47b8980ad92ace3527dab3714c350c6e387?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/a015d4268c2e527edabfbbb81385e47b8980ad92ace3527dab3714c350c6e387?s=96&d=mm&r=g\",\"caption\":\"Quattro\"},\"sameAs\":[\"https:\/\/alan.lu\"],\"url\":\"https:\/\/alan.lu\/fr\/author\/quattro-creative\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann - ALAN","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/","og_locale":"fr_FR","og_type":"article","og_title":"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann - ALAN","og_description":"En ce temps d\u2019incertitude et de d\u00e9sinformation li\u00e9es \u00e0 la pand\u00e9mie COVID-19, nous avons demand\u00e9 \u00e0 Dr Michel Hoffmann, s\u2019il y a des particularit\u00e9s auxquelles les personnes affect\u00e9es par une maladie rare doivent pr\u00eater attention.","og_url":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/","og_site_name":"ALAN","article_published_time":"2020-08-14T14:43:23+00:00","article_modified_time":"2021-01-27T13:10:29+00:00","og_image":[{"width":1300,"height":845,"url":"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg","type":"image\/jpeg"}],"author":"Quattro","twitter_card":"summary_large_image","twitter_misc":{"\u00c9crit par":"Quattro","Dur\u00e9e de lecture estim\u00e9e":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#article","isPartOf":{"@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/"},"author":{"name":"Quattro","@id":"https:\/\/alan.lu\/fr\/#\/schema\/person\/5869442239d979f9faed6e70b7b9aa22"},"headline":"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann","datePublished":"2020-08-14T14:43:23+00:00","dateModified":"2021-01-27T13:10:29+00:00","mainEntityOfPage":{"@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/"},"wordCount":293,"image":{"@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#primaryimage"},"thumbnailUrl":"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg","articleSection":["COVID-19"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/","url":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/","name":"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann - ALAN","isPartOf":{"@id":"https:\/\/alan.lu\/fr\/#website"},"primaryImageOfPage":{"@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#primaryimage"},"image":{"@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#primaryimage"},"thumbnailUrl":"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg","datePublished":"2020-08-14T14:43:23+00:00","dateModified":"2021-01-27T13:10:29+00:00","author":{"@id":"https:\/\/alan.lu\/fr\/#\/schema\/person\/5869442239d979f9faed6e70b7b9aa22"},"breadcrumb":{"@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#primaryimage","url":"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg","contentUrl":"https:\/\/alan.lu\/wp-content\/uploads\/2020\/08\/Michel-Hoffmann.jpg","width":1300,"height":845},{"@type":"BreadcrumbList","@id":"https:\/\/alan.lu\/fr\/covid-19-et-maladies-rares-message-du-dr-michel-hoffmann\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Accueil","item":"https:\/\/alan.lu\/fr\/"},{"@type":"ListItem","position":2,"name":"COVID-19 et maladies rares \u2013 Message du Dr. Michel Hoffmann"}]},{"@type":"WebSite","@id":"https:\/\/alan.lu\/fr\/#website","url":"https:\/\/alan.lu\/fr\/","name":"ALAN","description":"Rare Diseases Luxembourg","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/alan.lu\/fr\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Person","@id":"https:\/\/alan.lu\/fr\/#\/schema\/person\/5869442239d979f9faed6e70b7b9aa22","name":"Quattro","image":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/alan.lu\/fr\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/a015d4268c2e527edabfbbb81385e47b8980ad92ace3527dab3714c350c6e387?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/a015d4268c2e527edabfbbb81385e47b8980ad92ace3527dab3714c350c6e387?s=96&d=mm&r=g","caption":"Quattro"},"sameAs":["https:\/\/alan.lu"],"url":"https:\/\/alan.lu\/fr\/author\/quattro-creative\/"}]}},"_links":{"self":[{"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/posts\/21133","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/comments?post=21133"}],"version-history":[{"count":5,"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/posts\/21133\/revisions"}],"predecessor-version":[{"id":21851,"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/posts\/21133\/revisions\/21851"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/media\/21134"}],"wp:attachment":[{"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/media?parent=21133"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/categories?post=21133"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/alan.lu\/fr\/wp-json\/wp\/v2\/tags?post=21133"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}