{"id":28501,"date":"2023-06-08T11:10:40","date_gmt":"2023-06-08T09:10:40","guid":{"rendered":"https:\/\/alan.lu\/?p=28501"},"modified":"2023-06-08T11:10:41","modified_gmt":"2023-06-08T09:10:41","slug":"resultats-de-lenquete-rare-barometer-sur-lodyssee-diagnostique","status":"publish","type":"post","link":"https:\/\/alan.lu\/fr\/resultats-de-lenquete-rare-barometer-sur-lodyssee-diagnostique\/","title":{"rendered":"Resultats de l\u2019enqu\u00eate Rare Barometer sur l\u2019odyss\u00e9e diagnostique"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row][vc_column][vc_empty_space height=&#8221;50px&#8221;][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]L\u2019enqu\u00eate EURORDIS Rare Barometer sur l\u2019odyss\u00e9e diagnostique des patients maladies rares montre entre autres qu&#8217;au Luxembourg :<\/p>\n<ul>\n<li>il se passe 5 ans en moyenne entre les 1ers sympt\u00f4mes &amp; la confirmation du diagnostic.<\/li>\n<li>&gt; 60% des personnes concern\u00e9es ont consult\u00e9 5 professionnels de sant\u00e9 ou plus lors de leur recherche de diagnostic.<\/li>\n<li>&gt; 60% des personnes concern\u00e9es ont subi un retard d\u2019acc\u00e8s aux soins\/traitements adapt\u00e9s \u00e0 la suite d\u2019une erreur diagnostique.<\/li>\n<\/ul>\n<p>[\/vc_column_text][vc_empty_space height=&#8221;50px&#8221;][\/vc_column][\/vc_row][vc_row][vc_column][vc_single_image image=&#8221;28503&#8243; img_size=&#8221;full&#8221;][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>L\u2019enqu\u00eate EURORDIS Rare Barometer sur l\u2019odyss\u00e9e diagnostique des patients maladies rares montre entre autres qu&#8217;au Luxembourg :<br \/>\n\u2022\t il se passe 5 ans en moyenne entre les 1ers sympt\u00f4mes &#038; la confirmation du diagnostic.<br \/>\n\u2022\t> 60% des personnes concern\u00e9es ont consult\u00e9 5 professionnels de sant\u00e9 ou plus lors de leur recherche de diagnostic.<br \/>\n\u2022\t> 60% des personnes concern\u00e9es ont subi un retard d\u2019acc\u00e8s aux soins\/traitements adapt\u00e9s \u00e0 la suite d\u2019une erreur diagnostique&#8230;<\/p>\n","protected":false},"author":2,"featured_media":28508,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"inline_featured_image":false,"footnotes":""},"categories":[121],"tags":[],"class_list":["post-28501","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-activites-dalan"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - 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