Our vision, mission & values
ALAN – Maladies Rares Luxembourg is a non-profit association (association sans but lucratif – a.s.b.l) founded in 1998 and declared of public utility in 2000.
01Our vision
Fostering an environment for people living with a rare disease to realize their full potential through recognition, equal opportunities and improved quality of life.
02Our mission
ALAN’s social objective is to support and defend the interests of people affected by a rare disease and to enable and empower them to improve their quality of life.
ALAN’s main missions are:
- to inform, counsel and support people affected by a rare disease and their families, in particular by facilitating their access to health care, administrative procedures, education, work, family life, social inclusion and the exercise of their social rights;
- to organize recreational and physical activities that promote the mental, social and physical well-being of the participants;
- to promote the education, capacity building and empowerment of people affected by a rare disease;
- to regularly inform and raise awareness among the general public, as well as national authorities and institutions, about the issues faced by people living with a rare disease;
- to contribute to projects aimed at guaranteeing equal access to diagnosis, therapy, care and research for all people living with a rare disease;
- to promote scientific research on rare diseases;
- to develop and maintain national and international partnerships;
- as a national alliance: to federate the associations working in the field of specific rare diseases in order to ensure the recognition of patients’ interests in the public opinion, politics and society;
- and to collaborate with Luxembourgish or foreign public or private entities that pursue objectives that are similar to those of ALAN, or that are likely to be beneficial to ALAN and its members.
03Our values
At ALAN, we stress three core values that guide our professional and personal behaviour:
- Integrity – adhering to strong ethical principles and protecting the trust that patients and their families place in us
- Empathy – being considerate and sensitive towards all individuals regardless of their situation
- Team spirit – working together within and across teams, institutions and borders, because together we are stronger