Contact us

Contact form

If you need information or support regarding a rare disease, if you are interested in our recreational and sports activities, if you have a question concerning a donation, membership, or any other issue, you can get in touch with us using the contact form below, by phone or by e-mail.

Contact details

I am looking for information, guidance or support regarding my rare disease

I have an enquiry regarding activities, memberships, donations, etc.

Opening hours

Monday – Friday
9:00 – 16:00

Consultations by appointment only. Our offices are easily accessible.



Parc Luxite
13, rue de l’Innovation
L-1896 Kockelscheuer


128, Porte des Ardennes
L-9145 Erpeldange