News

On Thursday, the 14th of October 2021, the inauguration of ALAN's new offices was celebrated in the presence of the mayor of Roeser, Tom Jungen, and the president of the health commission, Mars Di Bartolomeo. The organisation, which supports families affected by a rare disease, moved to Kockelscheuer, into the new, modern building of the engineering firm Schroeder & Associés S.A., in response to the consistent increase in requests for support and expansion of its activities.

“A true superhero’s power is invisible. Just like many rare diseases.” with this tagline, the non-profit organisations ALAN Maladies Rares Luxembourg and EDS Lëtzebuerg are launching their online awareness campaign “Invisible Heroes” in September 2021. The goal of the campaign is to fight prejudices and increase the public’s understanding of rare and invisible diseases.

In 2020, ALAN supported more than 400 patients and families affected by a rare disease, many of whom are particularly vulnerable to COVID-19. In addition to its psycho-social consultation services and adapted physical activities, ALAN primarily focused its efforts on national and international advocacy, awareness-raising and patient empowerment.

ALAN marks the start of the new year with two milestones. The non-profit organisation, which supports families affected by a rare disease, is moving from Bascharage to Kockelscheuer, into the new, modern building of the engineering firm Schroeder & Associés SA.

In 2019, ALAN supported nearly 400 patients and families affected by a rare disease, which represents more than 200 different diseases. The number of psychosocial consultations carried out by the multidisciplinary team in 2019 increased by 40% compared to the previous year.