News

In light of the evolution of the COVID-19 pandemic and in accordance with the latest government guidelines, we have cancelled the following recreational activities and courses until further notice:

Following the evolution of the pandemic and the deconfinement, we have decided to send another open letter to the government to draw its attention to a number of issues that have arisen again or that remain difficult to manage for the vulnerable population that we represent.

At the end of March, ALAN and a number of other association sent a joint open letter to the government to draw their attention to specific issues caused by the COVID-19 pandemic for families, where one person lives with a rare or severe chronic disease. Below you can find the Ministers’ response as well as our position statement to their response.

For families with children and people with a serious and/or rare disease, which we represent, the current health crisis represents an additional burden in their already difficult journey. To respond to their questions, concerns and needs, we have partnered with several organizations to send the following open letter to the Luxembourg government.

Because of the uncertainty and misinformation regarding COVID-19, we asked Dr Michel Hoffmann, if there are any particular precautions that people living with a rare disease should be taking during the current pandemic.