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Annual Report 2025 : growing needs and new perspectives with the 2nd National Plan

ALAN activities
ALAN’s 2025 Annual Report highlights the scale of support needs among individuals and families affected by a rare disease. Last year, the association’s psycho-social consultation service received a new record of 752 requests for support. This continued growth underscores the challenges of ensuring access and strengthening psycho-social support for people affected by these complex diseases....
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Rare Disease Day 2026

ALAN activities, Rare Disease Day
On the 28th of February 2026 we celebrate the 19th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact on the lives of those affected, including approximately 30,000 people in Luxembourg. As every year, ALAN Maladies Rares Luxembourg, the non-profit organisation and national alliance representing people affected by a rare disease in the Grand Duchy, will launch several actions to increase awareness and understanding for these diseases, most of which are chronic, progressive and incurable.
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The “24 hours” awareness campaign

ALAN activities
In September 2025, the association and national alliance representing people affected by a rare disease in Luxembourg ALAN – Maladies Rares Luxembourg, launched a new online awareness campaign with the support of their non-profit partners, Association Luxembourgeoise du Syndrome de Rett (ALSR) and EDS Lëtzebuerg. The campaign aims to increase the general public’s awareness for rare diseases, and their impact by showing 24 hours in the daily lives of 6 children and adults living with a rare disease....
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The strong demand for support in 2024 underlines the importance of the 2nd National Plan for Rare Diseases

ALAN activities
ALAN’s recent annual report shows that in 2024, the association's psychosocial consultation service received 699 requests for support – a record for the non-profit organization and national alliance representing people affected by rare diseases in Luxembourg. Thus, ALAN continued its support, patient empowerment, and advocacy efforts, particularly in light of the launch of the 2nd National Rare Disease Plan.
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Rare Disease Day 2025

ALAN activities, Rare Disease Day
On the 28th of February 2025 we celebrate the 18th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact on the lives of those affected, including approximately 30,000 people in Luxembourg. As every year, ALAN Maladies Rares Luxembourg, the non-profit organisation and national alliance representing people affected by a rare disease in the Grand Duchy, will launch several actions to increase awareness and understanding for these diseases, most of which are chronic, progressive and incurable.
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The “Rare Rewind” awareness campaign

ALAN activities
In early October 2024, ALAN launched a new interactive awareness campaign with the support of its partners.The campaign aims to increase the general public’s awareness for rare diseases, and the impact these diseases have on everyday life, with a special focus on the multifaceted complexity of the path that the affected people have to walk...
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Annual Report 2023

ALAN activities
In 2023, ALAN - Maladies Rares Luxembourg, the non-profit organisation and national alliance representing people affected by a rare disease in Luxembourg, celebrated its 25th anniversary. In this historic year for the association, its consultation service, which was recently recognized by the European Commission, supported 669 people and families affected by a rare disease, representing 263 different diseases.
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