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Rare diseases
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National Plan
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The “Talk TO me, not ABOUT me” campaign
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Home
Rare diseases
What is a rare disease ?
Living with a rare disease
National Plan
Testimonials
Resources
Our services
Consultations and support
Recreational activities
Advocacy
News & events
News
Events
The “30 000 hopes – 1 plan” campaign
The “Talk TO me, not ABOUT me” campaign
Rare Disease Day 2022
“Invisible Heroes” Campaign
Gallery
About us
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Board of directors
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