ALAN - we
care 4 rare!
At ALAN - we aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover more
ALAN - we
care 4 rare!
ALAN - we
care 4 rare!
Join our
community
Become a member of ALAN and join the community of rare disease patients, families and friends, legal entities, volunteers and stakeholders. Discover more
Join our
community
Join our
community

What is a rare disease?

A disease is classified as “rare” if it affects less than 1 in 2000 people.

There are over 6000 different rare diseases. Many of them are of genetic origin, chronic and progressive. Rare diseases impact quality of life and can reduce life expectancy.

30000

people concerned in Luxembourg

70

% start in childhood

6000

identified rare disease

5

years to get a correct diagnosis

30000 people in Luxembourg3 diseases are pediatric onset7000 identified rare diseases
5 years to get a correct diagnosis

Our services

Consultations

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Our social workers and psychologists provide free administrative and social support, as well as psychological counselling, to individuals and families affected by a rare disease.

Recreational activities

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We offer adapted physical activities, such as relaxation courses, yoga, aqua gymnastics or horse therapy, to our members to boost their well-being, confidence and self-esteem.

Get involved

Choose your way to support our association!

Together, we can make a difference.

We are able to offer our services thanks to the generosity and commitment of numerous individuals and organizations. Every gesture of support contributes to improving the quality of life of children and adults living with a rare disease.

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A rewarding experience

Become a volunteer

Find out how
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Join our community

Become a member

Find out how
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Every donation counts

Make a donation

Find out how

Latest news

Survey results: COVID-19 vaccination of people with rare diseases

ALAN wanted to better understand how people with a rare disease view the COVID-19 vaccination as well as the effectiveness of the strategy for vulnerable individuals. To this end, ALAN ran an anonymous survey amongst the members of the association and the rare disease community in Luxembourg. The results of this survey have now been published.

Annual Report 2020

In 2020, ALAN supported more than 400 patients and families affected by a rare disease, many of whom are particularly vulnerable to COVID-19. In addition to its psycho-social consultation services and adapted physical activities, ALAN primarily focused its efforts on national and international advocacy, awareness-raising and patient empowerment.

Latest event

june

19jun10 h 00 min15 h 00 minEmotion Management Workshop: Exprimer ses émotions par la peintureEvent Type :Member event

july

03jul10 h 00 min15 h 00 minEmotion Management Workshop : Explorer ses émotions par le mentalEvent Type :Member event

Get in touch if you have questions or need support

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