Contact us
If you need information or support regarding a rare disease, if you are interested in our recreational and sports activities, if you have a question concerning a donation, membership, or any other issue, you can get in touch with us using the contact form below, by phone or by e-mail.
Contact details
I am looking for information, guidance or support regarding my rare disease
I have an enquiry regarding activities, memberships, donations, etc.
Consultations by appointment only. Our offices are easily accessible.