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Resource Centre

Resource Centre

Empowerment begins with access to knowledge. Our Resource Centre aims to offer reliable and accessible information, along with practical tools to support people living with a rare disease and their families. It is designed to help you better understand your illness, the health and social services system, approaches to treatment and care, and your rights, so that you can make your voice heard, advocate for your needs, and actively participate in decisions concerning your health and well-being.

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The “Guide d’orientation luxembourgeois pour les personnes vivant avec une maladie rare” provides information on the services and aids that are available within different areas (e.g. health care, social security, financial aid, schooling etc).
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DNA, protein synthesis, genetic heritability, etc.
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genetic testing, newborn screening, European Reference Networks (ERNs), etc.
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access to treatment, clinical trials & drug development, gene & cell therapy, etc.
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stress management, pain management, relaxation techniques, etc.
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social rights, work, school, etc.
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Get in touch if you have questions or need support

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