23 September 2025
In late September 2025, the association and national alliance representing people affected by a rare disease in Luxembourg ALAN – Maladies Rares Luxembourg, launched a new online awareness campaign with the support of their non-profit partners, Association Luxembourgeoise du Syndrome de Rett (ALSR) and EDS Lëtzebuerg .
The campaign aims to increase the general public’s awareness for rare diseases, and their impact by showing 24 hours in the daily lives of 6 children and adults living with a rare disease.
You can find all the details of the campaign, including the videos, on : https://alan.lu/24hours/
You can support the rare disease community by sharing the campaign and joining the discussion on social media:
- Instagram : @alanmaladiesraresluxembourg
- TikTok : @alan_maladies_rares_lux
- Facebook : @alanmaladiesraresluxembourg
