Annual Report 2021
10 May 2022
In 2021, ALAN supported 562 patients and families affected by a rare disease, representing 241 different diseases. The activity report, presented at the recent general assembly, shows that the number...
Author: Sarah Sepoy
Rare Disease Day 2022 : photo exhibit & building illumination
25 February 2022
For Rare Disease Day 2022, ALAN - Maladies Rares Luxembourg, the national alliance representing people affected by a rare disease in Luxembourg, in collaboration with photographer, Sophie Margue, presents a...
Offices closed during Christmas holidays
14 December 2021
Our offices, including the Infoline Maladies Rares Luxembourg, will be closed from the 20th of December 2021 to the 2nd of January 2022. We wish our whole community serene holidays among...
Open letter regarding the COVID-19 pandemic – December 2021
1 December 2021
Through a public letter, ALAN and 9 partner associations are launching a public appeal for vigilance, solidarity and respect, while recalling the essential facts regarding the COVID-19 pandemic....
Inauguration of ALAN’s new offices
18 October 2021
On Thursday, the 14th of October 2021, the inauguration of ALAN's new offices was celebrated in the presence of the mayor of Roeser, Tom Jungen, and the president of the...
Campaign to raise awareness for rare, invisible diseases
1 September 2021
“A true superhero’s power is invisible. Just like many rare diseases.” with this tagline, the non-profit organisations ALAN Maladies Rares Luxembourg and EDS Lëtzebuerg are launching their online awareness campaign...
Survey results: COVID-19 vaccination of people with rare diseases
9 June 2021
ALAN wanted to better understand how people with a rare disease view the COVID-19 vaccination as well as the effectiveness of the strategy for vulnerable individuals. To this end, ALAN...
Annual Report 2020
19 May 2021
In 2020, ALAN supported more than 400 patients and families affected by a rare disease, many of whom are particularly vulnerable to COVID-19. In addition to its psycho-social consultation services...
Rare Disease Day 2021 – Light It Up for Rare Diseases
26 February 2021
On the 28th of February 2021, people in more than 100 countries celebrate the 14th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact...
New location & new website
2 February 2021
ALAN marks the start of the new year with two milestones. The non-profit organisation, which supports families affected by a rare disease, is moving from Bascharage to Kockelscheuer, into the...