Board of directors

Julie Scheidweiler-Darné


Through her studies in Luxembourg, the United States of America and London (UK) she obtained a bachelor’s degree in communication. Since September 2018, she has been working part-time at the Ministry of Health and is doing her best to help people affected by a rare disease. Her nine-year-old daughter lives with a rare, undiagnosed disease.

Julie Scheidweiler-Darné joined ALAN’s Board of Directors in 2019 and is motivated to work tirelessly to improve the system and the support for those affected by a rare disease.

Get in touch to tell us your story