Head of the psycho-social counselling service
Holds a Bachelor’s degree in Social Work since 2007 and has more than 10 years of experience working in the psycho-social area of rare diseases.
Trained in neuromuscular diseases and in palliative care.
Holds an inter-university degree in the transdisciplinary approach to genetic diseases by the Institut de Myologie.
Vice President of the National Committee for Rare Diseases.