In 2023, ALAN – Maladies Rares Luxembourg, the non-profit organisation and national alliance representing people affected by a rare disease in Luxembourg, celebrated its 25th anniversary. In this historic year for the association, its consultation service, which was recently recognized by the European Commission, supported 669 people and families affected by a rare disease, representing 263 different diseases. In addition to its consultation services and adapted recreational and physical activities, the association has invested a lot in its role as patient representative and alliance, in particular through an advocacy campaign for a second National Plan for Rare Diseases.
You can read the annual report (in French) here: https://alan.lu/wp-content/uploads/2024/04/Annual-Report-2023_web_high-res.pdf
