Board of directors
Vice President
He was responsible for the policies on rare diseases and cancer at the Public Health Directorate of the European Commission from 2004 to 2017, where he initiated the Commission’s communication and the Council’s recommendations on rare diseases and their implementation in different areas.
As a person with extensive international experience in rare diseases and being himself affected by a rare disease, he joined ALAN’s Board of Directors in 2018 to contribute within his areas of expertise. He was also an alternate member of the Steering Committee of the National Plan for Rare Diseases.