A special education professional, still working part time in the domain of basic skills of adults.. Active as a volunteer in the field of rare diseases since 2010. Member of the National Rare Diseases Committee. ALAN’s president from 2013 – 2023.
Being affected by a rare disease herself, she has experienced multiple challenges in everyday life. Nonetheless, she is convinced that the situation for people living with a rare disease can be improved. She greatly appreciates intensified networking activity between professionals and patients. Her motto: « Together we are stronger ».