This year, ALAN celebrates its 25th anniversary. To celebrate this milestone, the association organized an academic session at the “Kinneksbond” Cultural Center in Mamer, on the 20th of September 2023 in the presence of HRH the Grand Duchess. The academic session marked the publication of the children’s book “Toni Konfettoni” by the writer and president of ALAN, Anja Di Bartolomeo and the illustrator, Snejana Granatkina, and published by Éditions Guy Binsfeld. In addition, the association launched its new online campaign “30,000 hopes – 1 plan” – a call for a second National Rare Disease Plan for the approximately 30,000 people living with a rare disease in Luxembourg.
21 September 2023