In light of the evolution of the COVID-19 pandemic and in accordance with the latest government guidelines, we have cancelled the following recreational activities and courses until further notice:...
Following the evolution of the pandemic and the deconfinement, we have decided to send another open letter to the government to draw its attention to a number of issues that...
In 2019, ALAN supported nearly 400 patients and families affected by a rare disease, which represents more than 200 different diseases. The number of psychosocial consultations carried out by the...
At the end of March, ALAN and a number of other association sent a joint open letter to the government to draw their attention to specific issues caused by the...
For families with children and people with a serious and/or rare disease, which we represent, the current health crisis represents an additional burden in their already difficult journey. To respond...
Because of the uncertainty and misinformation regarding COVID-19, we asked Dr Michel Hoffmann, if there are any particular precautions that people living with a rare disease should be taking during...
On the 18th of February 2020, ALAN – Maladies Rares Luxembourg received a Black Pearl Award from EURORDIS, the European alliance of organisation for patients with rare diseases. ...
For the international Rare Disease Day 2020, ALAN is organising the fifth edition of its big Quiz Night, on 29 February 2020 at the event hall in Holzem. ...
As part of the first National Plan for Rare Diseases 2018-2022, the Ministry of Health launched the "Infoline Maladies Rares Luxembourg", a first line of support, information and consultation for...