New open letter to the government regarding the health crisis

The first open letter that we sent to the government at the start of the COVID-19 pandemic led to the implementation of several concrete action points.

Following the evolution of the pandemic and the deconfinement, we have decided to send another open letter to the government to draw its attention to a number of issues that have arisen again or that remain difficult to manage for the vulnerable population that we represent.

ALAN – Maladies Rares Luxembourg

Fondatioun Kriibskrank Kanner

Supported by:

  • Häerzkrank Kanner zu Lëtzebuerg
  • Info-Handicap
  • Association Luxembourgeoise de Lutte contre la Mucoviscidose
  • Wäertvollt Liewen asbl
  • En Häerz fir kriibskrank Kanner
  • Association Européenne contre les Leucodystrophies
  • Den-i asbl, syndrome de Marfan