15 August 2020
For families with children and people with a serious and/or rare disease, which we represent, the current health crisis represents an additional burden in their already difficult journey. To respond to their questions, concerns and needs, we have partnered with several organizations to send the following open letter to the Luxembourg government. We hereby hope that current measures will be extended to the specific needs of people with serious pathologies and rare diseases. We are aware that the decision makers are working tirelessly and are confident that they will find solutions to these specific and urgent issues.
ALAN – Maladies Rares Luxembourg
Fondatioun Kriibskrank Kanner (Aide aux Enfants atteints d’un cancer)
Supported by:
- Häerzkrank Kanner zu Lëtzebuerg
- Info-Handicap
- Association Luxembourgeoise de Lutte contre la Mucoviscidose
- Wäertvollt Liewen asbl
- En Häerz fir kriibskrank Kanner
- Association Européenne contre les Leucodystrophies
- Den-i asbl, syndrome de Marfan
