Through a public letter, ALAN and 9 partner associations are launching a public appeal for vigilance, solidarity and respect, while recalling the essential facts regarding the COVID-19 pandemic....
ALAN wanted to better understand how people with a rare disease view the COVID-19 vaccination as well as the effectiveness of the strategy for vulnerable individuals. To this end, ALAN...
In light of the evolution of the COVID-19 pandemic and in accordance with the latest government guidelines, we have cancelled the following recreational activities and courses until further notice:...
Following the evolution of the pandemic and the deconfinement, we have decided to send another open letter to the government to draw its attention to a number of issues that...
At the end of March, ALAN and a number of other association sent a joint open letter to the government to draw their attention to specific issues caused by the...
For families with children and people with a serious and/or rare disease, which we represent, the current health crisis represents an additional burden in their already difficult journey. To respond...
Because of the uncertainty and misinformation regarding COVID-19, we asked Dr Michel Hoffmann, if there are any particular precautions that people living with a rare disease should be taking during...