The EURORDIS Rare Barometer survey on the diagnostic odyssey of rare disease patients shows, among other things, that in Luxembourg: • it takes 5 years on average between the appearance of...
In 2022, ALAN received almost 700 requests for support from people affected by a rare disease, representing around 300 different diseases. The annual report, presented at the recent General Assembly,...
For Rare Disease Day 2023, the national alliance representing people affected by a rare disease in Luxembourg, ALAN – Maladies Rares Luxembourg, has published a position paper with its partners....
To fight the prejudices that people living with a rare disease have to face, ALAN and its partners have launched a new communication campaign in September 2022. The slightly provocative...
In 2021, ALAN supported 562 patients and families affected by a rare disease, representing 241 different diseases. The activity report, presented at the recent general assembly, shows that the number...
For Rare Disease Day 2022, ALAN - Maladies Rares Luxembourg, the national alliance representing people affected by a rare disease in Luxembourg, in collaboration with photographer, Sophie Margue, presents a...
On Thursday, the 14th of October 2021, the inauguration of ALAN's new offices was celebrated in the presence of the mayor of Roeser, Tom Jungen, and the president of the...
“A true superhero’s power is invisible. Just like many rare diseases.” with this tagline, the non-profit organisations ALAN Maladies Rares Luxembourg and EDS Lëtzebuerg are launching their online awareness campaign...
In 2020, ALAN supported more than 400 patients and families affected by a rare disease, many of whom are particularly vulnerable to COVID-19. In addition to its psycho-social consultation services...
On the 28th of February 2021, people in more than 100 countries celebrate the 14th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact...