For Rare Disease Day 2022, ALAN - Maladies Rares Luxembourg, the national alliance representing people affected by a rare disease in Luxembourg, in collaboration with photographer, Sophie Margue, presents a...
On Thursday, the 14th of October 2021, the inauguration of ALAN's new offices was celebrated in the presence of the mayor of Roeser, Tom Jungen, and the president of the...
“A true superhero’s power is invisible. Just like many rare diseases.” with this tagline, the non-profit organisations ALAN Maladies Rares Luxembourg and EDS Lëtzebuerg are launching their online awareness campaign...
In 2020, ALAN supported more than 400 patients and families affected by a rare disease, many of whom are particularly vulnerable to COVID-19. In addition to its psycho-social consultation services...
On the 28th of February 2021, people in more than 100 countries celebrate the 14th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact...
ALAN marks the start of the new year with two milestones. The non-profit organisation, which supports families affected by a rare disease, is moving from Bascharage to Kockelscheuer, into the...
In 2019, ALAN supported nearly 400 patients and families affected by a rare disease, which represents more than 200 different diseases. The number of psychosocial consultations carried out by the...
On the 18th of February 2020, ALAN – Maladies Rares Luxembourg received a Black Pearl Award from EURORDIS, the European alliance of organisation for patients with rare diseases. ...
As part of the first National Plan for Rare Diseases 2018-2022, the Ministry of Health launched the "Infoline Maladies Rares Luxembourg", a first line of support, information and consultation for...