Annual Report 2020
19 May 2021
In 2020, ALAN supported more than 400 patients and families affected by a rare disease, many of whom are particularly vulnerable to COVID-19. In addition to its psycho-social consultation services...
ALAN activities
Rare Disease Day 2021 – Light It Up for Rare Diseases
26 February 2021
On the 28th of February 2021, people in more than 100 countries celebrate the 14th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact...
New location & new website
2 February 2021
ALAN marks the start of the new year with two milestones. The non-profit organisation, which supports families affected by a rare disease, is moving from Bascharage to Kockelscheuer, into the...
Annual Report 2019
17 August 2020
In 2019, ALAN supported nearly 400 patients and families affected by a rare disease, which represents more than 200 different diseases. The number of psychosocial consultations carried out by the...
ALAN receives European award for its commitment
12 August 2020
On the 18th of February 2020, ALAN – Maladies Rares Luxembourg received a Black Pearl Award from EURORDIS, the European alliance of organisation for patients with rare diseases. ...
Launch of the “Infoline Maladies Rares Luxembourg”
10 August 2020
As part of the first National Plan for Rare Diseases 2018-2022, the Ministry of Health launched the "Infoline Maladies Rares Luxembourg", a first line of support, information and consultation for...
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