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Rare diseases
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Living with a rare disease
National Plan
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The “30 000 hopes – 1 plan” campaign
The “Talk TO me, not ABOUT me” campaign
RaReflections
“Invisible Heroes” Campaign
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Home
Rare diseases
What is a rare disease ?
Living with a rare disease
National Plan
Testimonials
Resources
Our services
Consultations and support
Recreational activities
Advocacy
News & events
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Events
Rare Disease Day 2024
The “30 000 hopes – 1 plan” campaign
The “Talk TO me, not ABOUT me” campaign
RaReflections
“Invisible Heroes” Campaign
Gallery
About us
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Operational team
Scientific board
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