Recruitment : social worker
25 September 2025
Pour renforcer son équipe l’a.s.b.l. ALAN – Maladies Rares Luxembourg recherche un(e) : Assistant social /Assistant d’hygiène social (m/w/d) ...
Author: Sarah Sepoy
The “24 hours” awareness campaign
23 September 2025
In September 2025, the association and national alliance representing people affected by a rare disease in Luxembourg ALAN – Maladies Rares Luxembourg, launched a new online awareness campaign with the...
The strong demand for support in 2024 underlines the importance of the 2nd National Plan for Rare Diseases
14 May 2025
ALAN’s recent annual report shows that in 2024, the association's psychosocial consultation service received 699 requests for support – a record for the non-profit organization and national alliance representing people...
Rare Disease Day 2025
26 February 2025
On the 28th of February 2025 we celebrate the 18th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact on the lives of those...
The “Rare Rewind” awareness campaign
1 October 2024
In early October 2024, ALAN launched a new interactive awareness campaign with the support of its partners.The campaign aims to increase the general public’s awareness for rare diseases, and the...
Annual Report 2023
29 April 2024
In 2023, ALAN - Maladies Rares Luxembourg, the non-profit organisation and national alliance representing people affected by a rare disease in Luxembourg, celebrated its 25th anniversary. In this historic year...
ALAN’s psycho-social consultation service is recognized by the European Commission
7 March 2024
In February 2024, the consultation service of ALAN Maladies Rares Luxembourg received the “EU-Promising Practice in the field of Mental Health” label in recognition of its holistic approach to psycho-social...
Rare Disease Day 2024
28 February 2024
On the 29th of February 2024 we celebrate the 17th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact on the lives of those...
Offices closed during christmas holidays
21 December 2023
Our offices, including the Infoline Maladies Rares Luxembourg, will be closed from the 23th of December 2023 to the 2nd of January 204. We wish our whole community serene holidays among...
ALAN’s 25th anniversary: academic session, children’s book & advocacy campaign
21 September 2023
This year, ALAN celebrates its 25th anniversary. To celebrate this milestone, the association organized an academic session at the “Kinneksbond” Cultural Center in Mamer, on the 20th of September 2023...