In early October 2024, ALAN launched a new interactive awareness campaign with the support of its partners.The campaign aims to increase the general public’s awareness for rare diseases, and the...
D’a.s.b.l. ALAN – Maladies Rares Luxembourg sicht, fir ee Congé de maternité/parental ze ersetzen, een diploméierte Psycholog/ Psychotherapeut (m/w) ...
Pour remplacer un congé de maternité/parental l’a.s.b.l. ALAN recherche un Chargé de mission affaires publiques/Coordinateur d’alliance (m/f) ...
In 2023, ALAN - Maladies Rares Luxembourg, the non-profit organisation and national alliance representing people affected by a rare disease in Luxembourg, celebrated its 25th anniversary. In this historic year...
In February 2024, the consultation service of ALAN Maladies Rares Luxembourg received the “EU-Promising Practice in the field of Mental Health” label in recognition of its holistic approach to psycho-social...
On the 29th of February 2024 we celebrate the 17th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact on the lives of those...
D’a.s.b.l. ALAN – Maladies Rares Luxembourg sicht, fir säin Team ze verstäerken, een diploméierte Psycholog/ Psychotherapeut (m/w)...
Our offices, including the Infoline Maladies Rares Luxembourg, will be closed from the 23th of December 2023 to the 2nd of January 204. We wish our whole community serene holidays among...
This year, ALAN celebrates its 25th anniversary. To celebrate this milestone, the association organized an academic session at the “Kinneksbond” Cultural Center in Mamer, on the 20th of September 2023...
The EURORDIS Rare Barometer survey on the diagnostic odyssey of rare disease patients shows, among other things, that in Luxembourg: • it takes 5 years on average between the appearance of...