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Posts by category
- Category: ALAN activities
- The “Rare Rewind” awareness campaign
- Recruitment : psychologist
- Recruitment : coordinator of the national alliance
- Annual Report 2023
- ALAN’s psycho-social consultation service is recognized by the European Commission
- Rare Disease Day 2024
- Recruitment : psychologist
- Offices closed during christmas holidays
- ALAN’s 25th anniversary: academic session, children’s book & advocacy campaign
- Results from the Rare Barometer survey on the diagnostic odyssey
- General Assembly: annual report & new president
- Rare diseases in Luxembourg: a crucial public health issue and a pressing socio-political decision
- The “Talk TO me, not ABOUT me” awareness campaign
- Annual Report 2021
- Rare Disease Day 2022 : photo exhibit & building illumination
- Inauguration of ALAN’s new offices
- Campaign to raise awareness for rare, invisible diseases
- Annual Report 2020
- Rare Disease Day 2021 – Light It Up for Rare Diseases
- New location & new website
- Annual Report 2019
- ALAN receives European award for its commitment
- Launch of the “Infoline Maladies Rares Luxembourg”
- Category: Covid-19
- Open letter regarding the COVID-19 pandemic – December 2021
- Survey results: COVID-19 vaccination of people with rare diseases
- Cancellation of recreational activities and courses due to the COVID-19 pandemic
- New open letter to the government regarding the health crisis
- Government’s response to our open letter
- Open letter to the government regarding the health crisis
- COVID-19 and rare diseases – Message from Dr Michel Hoffmann
- Category: Rare Disease Day